"They Could Have Cut My Head Off and I Wouldn't Have Cared"-A Qualitative Study of Patient Experiences and the Impact of Trigeminal Neuralgia.

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2022-01-01 DOI:10.11607/ofph.3110

Carolina Venda Nova, Joanna M Zakrzewska, Richeal Ni Riordain, Sarah R Baker

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引用次数: 2

Abstract

Aims: To understand, from the patient perspective, the meaning of living with trigeminal neuralgia (TN) and what the patient-desired outcomes of treatment are.

Methods: A qualitative study involving focus group work with 14 participants with a diagnosis of TN was conducted. The discussions were recorded and transcribed verbatim and analyzed using framework analysis.

Results: Four themes and 14 subthemes were identified. Theme 1 reflects the uncertainty about TN etiology and prognosis; theme 2 includes descriptions of the mental, social, and physical impacts of TN that contrast with coping mechanisms developed over time; theme 3 reflects participants' views of what a successful treatment means and the specific outcomes they expect following treatment, as well as patient willingness to self-manage their conditions while supported; and theme 4 highlights the importance of appropriate and timely access to health care and the importance of peer support.

Conclusion: This study confirms the need to move beyond the biologic models of disease to patient-centered care and research approaches.

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“他们可以把我的头砍下来，我也不会在意”——三叉神经痛患者经历和影响的定性研究。

目的:从患者的角度了解三叉神经痛(TN)生存的意义以及患者期望的治疗结果。方法:采用焦点小组的定性研究方法，对14名确诊为TN的患者进行定性研究。对讨论进行逐字记录和转录，并采用框架分析法进行分析。结果:确定了4个主题和14个子主题。主题1反映了TN病因和预后的不确定性;主题2包括描述TN对心理、社会和身体的影响，这些影响与长期发展的应对机制形成对比;主题3反映了参与者对成功治疗的意义和他们期望治疗后的具体结果的看法，以及患者在得到支持时自我管理病情的意愿;主题4强调适当和及时获得卫生保健的重要性以及同伴支持的重要性。结论:这项研究证实了需要超越疾病的生物学模型，转向以患者为中心的护理和研究方法。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.