Experiences of adults living with a kidney transplant—Effects on physical activity, physical function, and quality of life: A descriptive phenomenological study

IF 1.5 4区 医学 Q3 NURSING
Joe Antoun, Daniel J. Brown, Beth G. Clarkson, Anthony I. Shepherd, Nicholas C. Sangala, Robert J. Lewis, Melitta A. McNarry, Kelly A. Mackintosh, Jo Corbett, Zoe L. Saynor
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引用次数: 1

Abstract

Background

Although kidney transplantation is the best treatment for kidney failure, scarce research has examined its effects on physical activity, physical function and quality of life.

Objectives

To investigate the experiences of a group of adults living with advanced kidney disease focusing on quality of life, physical activity and function and to see how findings differ in a group of kidney transplant recipients.

Approach

Individual semi-structured interviews were conducted with adults with advanced kidney disease (n = 10; 70.5 ± 8.9 years) and adults who had received a kidney transplant (n = 10; 50.7 ± 11.5 years; transplant age: 42.7 ± 20.9 months). Interviews were transcribed verbatim, thematically analysed and composite vignettes developed.

Findings

Individuals with advanced kidney disease described a sense of loss and alteration to their life plans. Kidney transplant recipients reported increased freedom, independence and a return to near normality, with improved quality of life, physical activity and function compared with their pre-transplant lives. However, transplant recipients also described living with anxiety about the health of their transplant and fear it may fail.

Conclusion

Whilst adults living with advanced kidney disease often experience a reduced quality of life, physical activity and function, kidney transplantation can help facilitate a return to pre-disease levels of physical activity, physical function and quality of life. However, transplant recipients also reported living with anxiety around their new kidney failing. This study demonstrates the variability in the lived experiences of adults living with advanced kidney disease or a kidney transplant and highlights the need for patient-centred care.

肾移植对成人身体活动、身体功能和生活质量的影响:一项描述性现象学研究
虽然肾移植是治疗肾衰竭的最佳方法,但很少有研究调查其对身体活动、身体功能和生活质量的影响。目的调查一组晚期肾脏疾病成年人的生活质量、身体活动和功能,并观察一组肾移植受者的结果有何不同。方法对患有晚期肾病的成人进行个体半结构化访谈(n = 10;70.5±8.9岁)和接受过肾移植的成年人(n = 10;50.7±11.5岁;移植年龄:42.7±20.9个月)。采访内容逐字抄录,按主题进行分析,并编制综合小品。研究结果:肾脏病晚期患者有失落感和生活计划的改变。肾移植受者报告说,与移植前相比,他们的生活质量、身体活动和功能都得到了改善,自由度、独立性和恢复接近正常。然而,移植接受者也描述了他们对移植健康的焦虑,担心移植可能会失败。结论:虽然患有晚期肾病的成年人的生活质量、身体活动和功能经常下降,但肾脏移植可以帮助他们恢复到疾病前的身体活动、身体功能和生活质量水平。然而,移植接受者也报告说,他们对新肾衰竭感到焦虑。本研究证明了晚期肾脏疾病或肾移植成人生活经历的可变性,并强调了以患者为中心的护理的必要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of renal care
Journal of renal care Nursing-Advanced and Specialized Nursing
CiteScore
3.50
自引率
5.30%
发文量
36
期刊介绍: The Journal of Renal Care (JORC), formally EDTNA/ERCA Journal, is the official publication of the European Dialysis and Transplant Nursing Association/European Renal Care Association (EDTNA/ERCA). The Journal of Renal Care is an international peer-reviewed journal for the multi-professional health care team caring for people with kidney disease and those who research this specialised area of health care. Kidney disease is a chronic illness with four basic treatments: haemodialysis, peritoneal dialysis conservative management and transplantation, which includes emptive transplantation, living donor & cadavaric transplantation. The continuous world-wide increase of people with chronic kidney disease (CKD) means that research and shared knowledge into the causes and treatment is vital to delay the progression of CKD and to improve treatments and the care given. The Journal of Renal Care is an important journal for all health-care professionals working in this and associated conditions, such as diabetes and cardio-vascular disease amongst others. It covers the trajectory of the disease from the first diagnosis to palliative care and includes acute renal injury. The Journal of Renal Care accepts that kidney disease affects not only the patients but also their families and significant others and provides a forum for both the psycho-social and physiological aspects of the disease.
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