The perception of disability in cerebral palsy: a cross-sectional study using the WHODAS 2.0.

IF 1.1 4区医学 Q4 CLINICAL NEUROLOGY

Developmental Neurorehabilitation Pub Date : 2023-07-01 DOI:10.1080/17518423.2023.2232002

Silvia Pizzighello, Alberto Raggi, Marinela Vavla, Marianna Uliana, Alda Pellegri, Michela Martinuzzi, Andrea Martinuzzi

{"title":"The perception of disability in cerebral palsy: a cross-sectional study using the WHODAS 2.0.","authors":"Silvia Pizzighello, Alberto Raggi, Marinela Vavla, Marianna Uliana, Alda Pellegri, Michela Martinuzzi, Andrea Martinuzzi","doi":"10.1080/17518423.2023.2232002","DOIUrl":null,"url":null,"abstract":"This observational study aims to describe the level of perceived disability in Cerebral Palsy (CP). We described the perception of adults by using the interviewer-administered version of the WHO disability assessment schedule (WHODAS 2.0). In case of intellectual disability (ID), the proxy-administered version was used, and a caregiver was asked to report the difficulties experienced by the patient; 199 patients were enrolled. The level of perceived disability was higher when referred to patients with ID (proxy report) than when referred to patients without ID (p < .001). For all patients, the level of perceived disability varied depending on the severity and the localization of motor impairment (both p < .001). No differences were observed based on the type of motor impairment. The perceived disability was correlated with age only for patients with no ID (p < .05). The WHODAS 2.0 may be a useful tool to explore the perception of disability in CP.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 5","pages":"302-308"},"PeriodicalIF":1.1000,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Developmental Neurorehabilitation","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17518423.2023.2232002","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}

引用次数: 0

Abstract

This observational study aims to describe the level of perceived disability in Cerebral Palsy (CP). We described the perception of adults by using the interviewer-administered version of the WHO disability assessment schedule (WHODAS 2.0). In case of intellectual disability (ID), the proxy-administered version was used, and a caregiver was asked to report the difficulties experienced by the patient; 199 patients were enrolled. The level of perceived disability was higher when referred to patients with ID (proxy report) than when referred to patients without ID (p < .001). For all patients, the level of perceived disability varied depending on the severity and the localization of motor impairment (both p < .001). No differences were observed based on the type of motor impairment. The perceived disability was correlated with age only for patients with no ID (p < .05). The WHODAS 2.0 may be a useful tool to explore the perception of disability in CP.

查看原文本刊更多论文

脑性瘫痪的残疾感知:使用WHODAS 2.0的横断面研究。

本观察性研究旨在描述脑瘫(CP)的感知残疾水平。我们通过使用访谈者管理的世卫组织残疾评估表(WHODAS 2.0)来描述成年人的看法。在智力残疾(ID)的情况下，使用代理管理版本，并要求护理人员报告患者所经历的困难;199例患者入组。与无ID患者相比，有ID患者的感知残疾水平更高(代理报告)

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Developmental Neurorehabilitation CLINICAL NEUROLOGY-PEDIATRICS

CiteScore

3.10

自引率

0.00%

发文量

审稿时长

6-12 weeks

期刊介绍： Developmental Neurorehabilitation aims to enhance recovery, rehabilitation and education of people with brain injury, neurological disorders, and other developmental, physical and intellectual disabilities. Although there is an emphasis on childhood, developmental disability can be considered from a lifespan perspective. This perspective acknowledges that development occurs throughout a person’s life and thus a range of impairments or diseases can cause a disability that can affect development at any stage of life.