Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association.

IF 6.9 2区医学

Circulation. Cardiovascular Quality and Outcomes Pub Date : 2023-02-01 Epub Date: 2023-01-12 DOI:10.1161/HCQ.0000000000000114

Elizabeth D Blume, Roxanne Kirsch, Melissa K Cousino, Jennifer K Walter, Jill M Steiner, Thomas A Miller, Desiree Machado, Christine Peyton, Emile Bacha, Emily Morell

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引用次数: 0

Abstract

Aim: This summary from the American Heart Association provides guidance for the provision of primary and subspecialty palliative care in pediatric congenital and acquired heart disease.

Methods: A comprehensive literature search was conducted from January 2010 to December 2021. Seminal articles published before January 2010 were also included in the review. Human subject studies and systematic reviews published in English in PubMed, ClinicalTrials.gov, and the Cochrane Collaboration were included. Structure: Although survival for pediatric congenital and acquired heart disease has tremendously improved in recent decades, morbidity and mortality risks remain for a subset of young people with heart disease, necessitating a role for palliative care. This scientific statement provides an evidence-based approach to the provision of primary and specialty palliative care for children with heart disease. Primary and specialty palliative care specific to pediatric heart disease is defined, and triggers for palliative care are outlined. Palliative care training in pediatric cardiology; diversity, equity, and inclusion considerations; and future research directions are discussed.

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心脏病儿童终身姑息治疗：美国心脏协会的科学声明。

目的：美国心脏协会的这篇综述为儿童先天性和获得性心脏病的初级和亚专业姑息治疗提供了指导。方法：对2010年1月至2021年12月的文献进行综合检索。2010年1月之前发表的研讨会文章也包括在评论中。包括PubMed、ClinicalTrials.gov和Cochrane Collaboration上以英语发表的人类受试者研究和系统综述。结构：尽管近几十年来，儿童先天性和获得性心脏病的存活率大幅提高，但一部分患有心脏病的年轻人的发病率和死亡率风险仍然存在，因此需要发挥姑息治疗的作用。这一科学声明为心脏病儿童提供初级和专业姑息治疗提供了一种循证方法。定义了针对儿童心脏病的初级和专业姑息治疗，并概述了姑息治疗的触发因素。儿科心脏病学姑息治疗培训；多样性、公平性和包容性考虑；并对未来的研究方向进行了展望。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Circulation. Cardiovascular Quality and Outcomes Medicine-Cardiology and Cardiovascular Medicine

CiteScore

9.80

自引率

2.90%

发文量

357

期刊介绍： Circulation: Cardiovascular Quality and Outcomes, an American Heart Association journal, publishes articles related to improving cardiovascular health and health care. Content includes original research, reviews, and case studies relevant to clinical decision-making and healthcare policy. The online-only journal is dedicated to furthering the mission of promoting safe, effective, efficient, equitable, timely, and patient-centered care. Through its articles and contributions, the journal equips you with the knowledge you need to improve clinical care and population health, and allows you to engage in scholarly activities of consequence to the health of the public. Circulation: Cardiovascular Quality and Outcomes considers the following types of articles: Original Research Articles, Data Reports, Methods Papers, Cardiovascular Perspectives, Care Innovations, Novel Statistical Methods, Policy Briefs, Data Visualizations, and Caregiver or Patient Viewpoints.