C36. HOT TOPICS IN BEHAVIORAL SCIENCES AND HEALTH SERVICES RESEARCH

Development of a Comprehensive, Integrated Patient Data Repository of US Pulmonary Arterial Hypertension (PAH) Patients to Assess the Impact of Clinical Care on Patient Outcomes

Pub Date : 2022-05-01 DOI: 10.1164/ajrccm-conference.2022.205.1_meetingabstracts.a3997 H. Farber, S. Milligan, S. Panjabi, Y. Tsang, K. Bettencourt, M. Cho

"It's a Cause I Believe In": Factors Influencing Participation and Engagement in Longitudinal, Respiratory-Focused Research Studies

Pub Date : 2022-05-01 DOI: 10.1164/ajrccm-conference.2022.205.1_meetingabstracts.a3987 A. Synn, K. Menson, M. Carnethon, A. Dixon, R. Kalhan, M. Krishnan, E. Sugar, G. Washko, R. Wise, M. Eakin, the ALA Lung Health Cohort Investigators

Australia and New Zealand Interstitial Lung Disease Registry (ANZ ILD) 2021 Update - Progress During the Pandemic

Pub Date : 2022-05-01 DOI: 10.1164/ajrccm-conference.2022.205.1_meetingabstracts.a3994 I. Moore, J. Wrobel, D. Jackson, J. Mackintosh, I. Glaspole, C. Grainge, M. Wilsher, F. Thien, D. Chambers, N. Goh, A. Edwards, H. Gallagher, B. Kwan, E. Veitch, G. Keir, T. Corte, on behalf of the AILDR Steering Committee