患者和护理人员对用于治疗囊性纤维化的气道清理方法的看法。

IF 2.1 4区 医学 Q3 RESPIRATORY SYSTEM
Canadian respiratory journal Pub Date : 2023-07-28 eCollection Date: 2023-01-01 DOI:10.1155/2023/1422319
Zoe E Kienenberger, Tyler O Farber, Mary E Teresi, Francesca Milavetz, Sachinkumar B Singh, Katie Larson Ode, Theodosia Thoma, Rebecca L Weiner, Kathryn R Burlage, Anthony J Fischer
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引用次数: 0

摘要

简介:囊性纤维化基金会指南建议囊性纤维化患者每天进行气道清理。这对患者来说可能很困难,因为有些患者觉得费时或不舒服。比较气道清理方法的数据很有限。我们对患者及其家属进行了调查,以了解他们更喜欢哪种方法,并找出进行气道清理的障碍:我们设计了一项 REDCap 调查,并于 2021 年招募了参与者。受访者报告了气道清理的使用情况、时间投入和药物使用情况。他们对气道清理方法的有效性、舒适性、时间投入、重要性以及与其他治疗方法的兼容性进行了评分。分析包括描述性统计和聚类:60 名受访者开始调查,52 名完成调查。患者年龄中位数为 20 岁。受访者一生中使用过的气道清理方法中位数为四种,包括胸壁振荡(背心,92%)、人工胸部物理治疗(CPT,88%)、强制呼气技术(呼气或咳嗽,77%)和运动(75%)。过去 30 天使用率最高的是运动(62%)和背心(57%)。每天花费的时间一般少于 2 小时。在有资格使用 CFTR 调节剂的受访者中,53% 的人表示在开始治疗后减少了清理气道的时间投入。在 0-100 分的评分中,受访者认为 CFTR 调节剂是最重要的治疗方法(中位数为 99.5),其次是运动(88)。讨论。患者和护理人员熟悉几种治疗 CF 的气道通畅方法。他们报告了每种方法的不同优势和局限性。运动和背心是最常见的气道清理方法。使用 CFTR 调节剂可减少患者报告的气道清理时间。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Patient and Caregiver Perceptions of Airway Clearance Methods Used for Cystic Fibrosis.

Patient and Caregiver Perceptions of Airway Clearance Methods Used for Cystic Fibrosis.

Patient and Caregiver Perceptions of Airway Clearance Methods Used for Cystic Fibrosis.

Patient and Caregiver Perceptions of Airway Clearance Methods Used for Cystic Fibrosis.

Introduction: Cystic Fibrosis Foundation guidelines recommend people with CF perform daily airway clearance. This can be difficult for patients, as some find it time consuming or uncomfortable. Data comparing airway clearance methods are limited. We surveyed patients and their families to understand which methods are preferred and identify obstacles to performing airway clearance.

Methods: We designed a REDCap survey and enrolled participants in 2021. Respondents reported information on airway clearance usage, time commitment, and medication use. They rated airway clearance methods for effectiveness, comfort, time commitment, importance, and compatibility with other treatments. The analysis included descriptive statistics and clustering.

Results: 60 respondents started and 52 completed the survey. The median patient age was 20 years. Respondents experienced a median of four airway clearance methods in their lifetime, including chest wall oscillation (vest, 92%), manual chest physical therapy (CPT, 88%), forced expiration technique (huff or cough, 77%), and exercise (75%). Past 30-day use was highest for exercise (62%) and vest (57%). The time commitment was generally less than 2 hours daily. Of those eligible for CFTR modulators, 53% reported decreased time commitment to airway clearance after starting treatment. On a scale of 0-100, respondents rated CFTR modulators as their most important treatment (median 99.5), followed by exercise (88). Discussion. Patients and caregivers are familiar with several methods of airway clearance for CF. They report distinct strengths and limitations of each method. Exercise and vest are the most common methods of airway clearance. The use of CFTR modulators may reduce patient-reported time commitment to airway clearance.

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来源期刊
Canadian respiratory journal
Canadian respiratory journal 医学-呼吸系统
CiteScore
4.20
自引率
0.00%
发文量
61
审稿时长
6-12 weeks
期刊介绍: Canadian Respiratory Journal is a peer-reviewed, Open Access journal that aims to provide a multidisciplinary forum for research in all areas of respiratory medicine. The journal publishes original research articles, review articles, and clinical studies related to asthma, allergy, COPD, non-invasive ventilation, therapeutic intervention, lung cancer, airway and lung infections, as well as any other respiratory diseases.
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