癌症晚期患者及其主要家庭照顾者精神需求的比较

Kyung-Ah Kang, Youngsim Choi
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引用次数: 8

摘要

目的:本研究旨在探讨晚期癌症患者及其主要家庭照顾者在精神兴趣相关疾病工具(SpIRIT)评分和精神需求程度上的差异,并比较两者之间的精神需求。方法:研究对象为40个国家临终关怀中心的住院晚期癌症患者及其主要家庭照顾者。最终分析包括120份来自患者的SpIRIT问卷和115份来自家庭成员的SpIRIT问卷,99份来自患者的SNs问卷和111份来自家庭成员的SNs问卷。数据分析采用描述性统计、t检验、单因素方差分析和Pearson相关系数。结果:两组间SpIRIT评分、SNs无显著差异。对于患者和主要家庭照顾者来说,精神的子维度排名较高的是“保持积极的观点”、“爱他人”和“找到意义”。社交网络子维度在两组中的排名相同,分别为“爱与联系”、“希望与和平”、“意义与目的”。在两组中,对精神事物重要性的认识和宗教信仰是影响精神评分和社交网络的主要因素。结论:晚期癌症患者及其主要家庭照顾者的社交网络(SNs)的SpIRIT评分与程度密切相关,且对连贯性和意义的需求大于宗教需求。在为绝症患者提供精神关怀时,也要考虑到家属,考虑到家属对精神需求的优先顺序以及精神事务和宗教的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Comparison of the Spiritual Needs of Terminal Cancer Patients and Their Primary Family Caregivers.

Comparison of the Spiritual Needs of Terminal Cancer Patients and Their Primary Family Caregivers.

Purpose: This study was conducted to examine differences in Spiritual Interests Related to Illness Tool (SpIRIT) scores and the degree of spiritual needs (SNs) between patients with terminal cancer and their primary family caregivers and to compare spiritual needs between them.

Methods: The study participants were inpatients with terminal cancer and their primary family caregivers at 40 national hospice centers. The final analysis included 120 SpIRIT surveys from patients and 115 from family members, and 99 SNs questionnaires from patients and 111 from family members. Data analysis was conducted using descriptive statistics, the t-test, one-way analysis of variance, and Pearson correlation coefficients.

Results: There were no significant between-group differences in SpIRIT scores or SNs. The SpIRIT sub-dimensions that ranked high for both patients and primary family caregivers were "maintaining positive perspective", "loving others", and "finding meaning". The SNs sub-dimensions were ranked identically in both groups, in the order of "love and connection", "hope and peace", "meaning and purpose", respectively. In both groups, the recognition of the importance of spiritual matters and religion were major factors influencing SpIRIT scores and SNs.

Conclusion: The SpIRIT scores and degree of SNs of patients with terminal cancer and their primary family caregivers were found to be very closely related, and the needs for coherence and meaning were greater than religious needs. When providing spiritual care for patients with terminal illness, family members should also be considered, and their prioritization of spiritual needs and the importance of spiritual matters and religion shall be taken into account.

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