新发血液癌患者及其家属的灵性观。探索性质的研究

IF 0.3 Q4 Medicine
Jean Toniolo, Pascale Beloni, Maya Zumstein-Shaha
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引用次数: 0

摘要

导言:对于新诊断的血液癌患者来说,灵性是一个重要的方面。灵性指的是一个人对激励和支撑他/她的事物的依恋,以及与之相关的信仰、价值观和存在体验,无论它们是否宗教。然而,这些方面并没有系统地、定期地确定并纳入血液癌患者的护理中。目的:探讨新诊断的恶性血液病患者及其家属对精神的感知。方法:采用半结构化的个体访谈法对患者及其家属进行定性描述研究,并填写精神幸福感、生活质量和症状负担三份问卷。结果:共纳入10例患者和6例家庭成员。访谈中出现了三种类型的灵性:宗教灵性、连接灵性和非宗教灵性。这些观念是这种疾病背景的一部分,这种疾病的突然发作需要调动诸如家庭支持、应对策略、复原力和希望等资源。讨论:除了身体上的后果,血液恶性肿瘤引起患者及其亲人的价值观和信仰的深刻变化。鼓励自我表达的时刻,例如解决灵性概念和支持患者的个人文化实践,是护士可以在实践中采用的重要支持措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The perspective of spirituality of patients with new hematological cancer and their families. An exploratory qualitative study

Introduction: For patients with newly diagnosed hematological cancer spirituality constitutes an important aspect. Spirituality refers to a person's attachment to what inspires and grounds him/her as well as to associated beliefs, values, and existential experiences, be they religious or not. However, these aspects are not systematically and regularly determined and integrated into the care of patients with hematological cancer.

Objective: To describe the perception of spirituality among patients with newly diagnosed hematological malignancies and their loved ones.

Method: This qualitative descriptive study employed semi-structured individual interviews with patients and their loved ones and the completion of three questionnaires concerning spiritual well-being, quality of life and symptom burden.

Results: A total of 10 patients and six family members were included in our study. Three types of spirituality emerged from the interviews: religious, connecting, and non-religious spirituality. These perceptions are part of the backdrop of this disease whose sudden onset requires the mobilization of resources such as family support, coping strategies, resilience, and hope.

Discussion: Beyond the physical consequences, hematological malignancies induce profound changes in patients and their loved-ones regarding their values and beliefs. Encouraging moments of self-expression such as addressing notions of spirituality and supporting patients in their personal cultural practices are important supportive measures that nurses can adopt into their practice.

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来源期刊
CiteScore
0.30
自引率
33.30%
发文量
25
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