低收入黑人和拉丁裔癌症幸存者的社区导航和支持性护理经验:患者和导航员的观点。

Journal of oncology navigation & survivorship Pub Date : 2023-04-01 Epub Date: 2023-04-19
Melissa Mazor, Daniel David, Dolores Moorehead, John D Merriman, Jenny J Lin
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引用次数: 0

摘要

背景:对社区导航在历史边缘化癌症幸存者的支持性护理中的作用知之甚少。本研究的目的是评估低收入,黑人和拉丁裔癌症幸存者的支持性护理经验,并检查他们的社区导航员的护理作用。方法:对来自社区低收入妇女组织的黑人和拉丁裔癌症幸存者(n=10)和导航员(n=4)的半结构化访谈进行定性评价,并采用内容分析法进行分析。结果:内容分析产生了六个主题,描述了随着时间的推移以及导航员支持前后的支持性护理体验。单独指导支持性护理:a)内部和外部影响者;B)独自生存;C)感到不知所措和痛苦。社区导航员提供支持性护理:a)建立信任和安全;B)接受多维、导航辅助的支持性护理管理;C)减轻痛苦。结论:患有癌症的低收入黑人和拉丁裔妇女报告了内在力量,但独自忍受癌症治疗导致了一种痛苦的感觉。随后,社区导航员提供了以病人为中心的支持性护理,减轻了身体和精神上的痛苦。这些发现强调了提高对社区导航员的认识和联系的重要性,他们可能能够满足不同患者群体的支持性护理需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Community Navigation and Supportive Care Experiences of Low-Income Black and Latina Cancer Survivors: Patient and Navigator Perspectives.

Background: Little is known about the role of community-based navigation in supportive care delivery for historically marginalized cancer survivors. The purposes of this study were to evaluate supportive care experiences of low-income, Black and Latina cancer survivors and examine the care role of their community navigator.

Methods: Qualitative evaluation of semi-structured interviews with Black and Latina cancer survivors (n=10) and navigators (n=4) from a community-based organization for low-income women were conducted and analyzed using content analysis.

Results: Content analysis yielded six themes that described the supportive care experience over time and before and after navigator support. Navigating supportive care alone: a) internal and external influencers; b) alone and just surviving; c) feeling overwhelmed and distressed. Community Navigator delivered supportive care: a) establishing trust and safety; b) accepting multi-dimensional, navigator assisted supportive care management; c) distress alleviation.

Conclusions: Low-income Black and Latina women with cancer reported internal strength yet endured cancer care alone leading to a feeling of distress. Subsequently, community navigators provided patient-centric, supportive care and alleviate physical and emotional distress. These findings highlight the importance of increasing awareness of and linkage to community navigators who may be able to meet the supportive care needs of diverse patient populations.

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