重新思考系统性残疾歧视:对扎古拉斯、埃利克和奥利西奥的回应。

Q1 Arts and Humanities
Erin E Andrews, Kara B Ayers, Joseph A Stramondo, Robyn M Powell
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引用次数: 1

摘要

引言:这篇文章是对Zagouras, Ellick和auliisio的回应,他们提出了一个案例研究,证明了一个身体残疾的年轻女性在怀孕期间面临强制终止妊娠的能力和自主性的质疑。病例描述:Julia是一名26岁的女性,患有神经功能障碍,需要在日常生活活动中获得帮助。据描述,她和父母住在一起,父母为她提供个人护理帮助。茱莉亚怀孕了,她的父母希望她终止妊娠,因为他们不想除了她之外还要照顾她的孩子。事实上,茱莉亚的父母威胁她,如果她不选择终止妊娠,就把她送进精神病院。她的医疗团队基于她所谓的“心理年龄”以及被庇护和排斥的经历,质疑她的决策能力。医疗团队使用指导性策略说服朱莉娅终止妊娠,这被描述为一种道德和女权主义的干预。讨论:当前的作者对所提供的案例分析提出了质疑,并认为他们忽视了对朱莉娅不利的系统性残疾歧视的许多实例,对怀孕和残疾表现出偏见和评判的态度,通过将她幼稚化来不恰当地质疑她的决策能力,误解了女性主义的关系自主概念,并与家庭成员的强制干预串通在一起。这是残疾妇女获得歧视性和文化上无能的生殖保健的典型例子。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Rethinking systemic ableism: A response to Zagouras, Ellick, and Aulisio.

Introduction: This article is a response to Zagouras, Ellick, and Aulisio who presented a case study justifying the questioning of the capacity and autonomy of a young woman with a physical disability who was pregnant and facing coercive pressure to terminate.

Case description: Julia is described as a 26-year-old woman with a neurological disability that requires her to receive assistance with activities of daily living. She was described as living with her parents who provided her with personal care assistance. Julia became pregnant and her parents wished her to terminate because they did not want to care for her child in addition to her. In fact, Julia's parents threatened her with institutionalization if she did not elect to terminate the pregnancy. Her health care team questioned her decision-making capacity based on her alleged "mental age" and experiences of being sheltered and excluded. The health care team used directive tactics to convince Julia to terminate the pregnancy, which describe as both an ethical and feminist intervention.

Discussion: The current authors take issue with the case analysis provided by and argue that they neglected to account for numerous instances of systemic ableism that adversely affected Julia, demonstrated prejudicial and judgmental attitudes toward pregnancy and disability, inappropriately questioned her decision-making capacity by infantilizing her, misconstrued the feminist concept of relational autonomy, and colluded with coercive interference from family members. This is a classic example of discriminatory and culturally incompetent reproductive health care for a disabled woman.

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来源期刊
Clinical Ethics
Clinical Ethics Arts and Humanities-Philosophy
CiteScore
1.30
自引率
0.00%
发文量
42
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