[患者和公众参与家庭医学研究]。

ZFA. Zeitschrift fur Allgemeinmedizin Pub Date : 2022-01-01 Epub Date: 2022-05-01 DOI:10.53180/zfa.2022.0178-0183
Jennifer Engler, Doreen Kuschick, Judith Tillmann, Christian Kretzschmann, Sibylle Wallacher, Christine Kersting
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引用次数: 1

摘要

患者和公众参与(PPI)在德国越来越重要,在家庭医学研究中也越来越多地得到实施。在国际上,不同的框架就如何在特定背景下成功设计和实施PPI提出了建议。然而,在家庭医学等特定环境中分享PPI经验以相互学习至关重要。因此,本文概述了德国实践研究网络倡议(DESAM ForNet)的实践研究网络(PBRN)中的PPI概念。在PBRN中,患者和公众通过“公共论坛”(BayFoNet)、“圆桌会议”(FoPraNet BW)或“患者咨询委员会”(HAFO.NRW、RESPoNsE、SaxoForN)的反复小组会议参与研究过程,特别关注项目的规划和传播阶段。迄今为止,最成功的招聘策略包括家庭医生的个人患者联系人、帖子/海报、当地自助组织和标准化患者计划。PPI的评估目前正在大多数PBRNS中设计。总的来说,PBRN特定的PPI概念代表了与患者和公众建立长期合作伙伴关系的多种可能性。这些示范性概念旨在鼓励在家庭医学研究中进一步发展和实施适应的PPI概念。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

[Patient and Public Involvement in Family Medicine Research].

[Patient and Public Involvement in Family Medicine Research].

Patient and Public Involvement (PPI) has gained importance in Germany and is also increasingly implemented in research in family medicine. Internationally, diverse frameworks give recommendations on how to successfully design and implement PPI in specific contexts. However, it is crucial to share experiences on PPI in specific settings such as family medicine in order to learn from each other. Thus, this article provides an overview of PPI concepts in the practice-based research networks (PBRNs) of the Initiative of German Practice-Based Research Networks - DESAM-ForNet. In the PBRNs patients and the public are involved in the research process by repeated group meetings in "public forums" (BayFoNet), "round tables" (FoPraNet-BW) or "patient advisory boards" (HAFO.NRW, RESPoNsE, SaxoForN) with a special focus on the planning and dissemination phase of projects. The most successful recruitment strategies so far have encompassed individual patient contacts of family physicians, postings/posters, local self-help organizations and standardized patient programs. Evaluation of PPI is currently being designed in most PBRNS. Overall, the PBRN-specific PPI concepts represent diverse possibilities to create long-term collaborative partnerships with patients and the public. These exemplary concepts are meant to encourage the further development and implementation of adapted PPI-concepts in family medicine research.

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