财产、隐私和对综合电子病历的追求

M. Hall
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引用次数: 27

摘要

谁拥有病人的医疗信息?病人,医疗服务提供者,还是保险公司?以上都是吗?以上都不是?在电子医疗记录的新兴时代,没有其他法律问题比这更关键、更有争议,或更不被理解。在纸质记录的时代,所有权从来没有多少疑问,但现在信息内容可以很容易地数字化,并从任何特定的存储介质中解脱出来,混乱占据了主导地位。如何解决这个问题会对电子和个人健康记录的大规模预期发展如何形成或是否形成产生巨大影响。患者、提供者和保险公司各自的产权将强烈影响,如果不是决定,哪种形式的电子健康信息最终占主导地位。而且,获取和使用医疗信息的权利能否商业化,可能会决定在没有政府公开授权的情况下,有效、全面的医疗信息网络能否出现。本文从网络经济学的角度分析了医疗信息的最优产权问题。它建议允许患者通过将他们的访问和控制权分配给一个可信的中介机构来货币化他们的访问和控制权,然后这些中介机构可能会将这些权利置于一个商业流中,从而决定它们的价值和最佳用途。由此产生的资金可以分配给患者和提供者,以鼓励他们采用和使用互联电子记录。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Property, Privacy and the Pursuit of Integrated Electronic Medical Records
Who owns a patient's medical information? The patient, the provider, or the insurer? All of the above? None of the above? In the emerging era of electronic medical records, no other legal question is more critical, more contested, or more poorly understood. Ownership was never much in doubt in an age of paper-based records, but now that information content can be easily digitized and freed from any particular storage medium, confusion reigns. How this issue is resolved can have huge impacts on how or whether massive anticipated developments in electronic and personal health records will take shape. The respective property rights of patients, providers and insurers will strongly influence, if not determine, what form of electronic health informatics ends up predominating. And, whether rights to access and use medical information can be commercialized may determine whether effective, comprehensive medical information networks can emerge at all, absent overt government mandate. This paper analyzes optimal property rights in medical information from the perspective of network economics. It proposes that patients be allowed to monetize their access and control rights by assigning them to a trusted intermediary who may then place these rights in a stream of commerce that determines their value and best use. The funds generated can then be distributed both to patients and providers to encourage their adoption and use of interconnected electronic records.
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