{"title":"超越精神分裂症:与严重精神疾病一起生活和工作","authors":"Peter G. Bota, S. Fraser, R. Groysman","doi":"10.4081/MI.2017.6782","DOIUrl":null,"url":null,"abstract":"Schizophrenia happens to some of us; however, it affects all of us... Beyond Schizophrenia by Marjorie L Baldwin is an excruciatingly honest revelation about personal victories and defeats in overcoming our society’s failures to rehabilitate a patient with schizophrenia. Mrs. Baldwin’s incredible courage in exposing her son’s illness offers a diverse understanding of the misery that schizophrenia brings into the lives of patients and their families and friends. A bold protest against discrimination of people affected by this most stigmatized condition, her book may appeal to anyone who aspires to help those craving hope and guidance on the complicated path to sanity. The book itself is designed to serve many purposes: to reduce the strong stigma against the mentally ill, to promote activism for reform in the broken mental health system, and to provide hope for the families. While the previous few decades have held many incredible advancements in the treatment of schizophrenia, efforts to rehabilitate patients back into labor market have not caught up to the promise of new treatments. Marjorie L. Baldwin, a well-respected labor economist who specializes in labor market discrimination against the disabled, starts her book chronicling the history of the mental health system as we know it today, from the age of permanent institutionalization to the creation of effective antipsychotics. She unearths many discrepancies in the delivery of the mental health system, focusing especially on abject failure of community care and prevention, as exemplified by her son’s devastation. 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引用次数: 7
摘要
精神分裂症会发生在我们中的一些人身上;然而,它影响着我们所有人……玛乔丽·L·鲍德温的《超越精神分裂症》是一本极其诚实的书,讲述了在克服我们的社会未能使精神分裂症患者康复的过程中,个人的胜利和失败。鲍德温夫人揭露儿子病情的勇气令人难以置信,这让人们对精神分裂症给病人及其家人和朋友的生活带来的痛苦有了不同的理解。她的书大胆地抗议受这种最受侮辱的疾病影响的人受到歧视,她的书可能会吸引任何渴望帮助那些渴望希望的人,并在通往理智的复杂道路上获得指导。这本书本身的设计有很多目的:减少对精神病患者的强烈耻辱,促进对破碎的精神卫生系统进行改革的行动主义,并为家庭提供希望。虽然在过去的几十年里,精神分裂症的治疗取得了许多令人难以置信的进步,但让患者重返劳动力市场的努力并没有跟上新治疗方法的步伐。马乔里·l·鲍德温(Marjorie L. Baldwin)是一位备受尊敬的劳动经济学家,专门研究劳动力市场对残疾人的歧视,她的书以我们今天所知道的精神卫生系统的历史为开端,从永久制度化的时代到有效抗精神病药物的发明。她揭露了精神卫生系统在提供服务方面的许多差异,尤其关注社区护理和预防的严重失败,她儿子的破坏就是一个例子。作者的个人和职业经历为读者在这个矛盾而复杂的体系中导航提供了无价的实用解决方案。鲍德温夫人提出了一个有价值的精神分裂症康复工具:就业。它允许一定程度的自信和独立,减轻家庭的一些负担,并提供一种新的身份,作为正常人,在他们和社会的眼中有正常的工作。作者的儿子成功地重新融入社会,给那些被诊断患有精神分裂症的人和长期受苦的照顾者带来了希望。
Beyond Schizophrenia: Living and Working with a Serious Mental Illness
Schizophrenia happens to some of us; however, it affects all of us... Beyond Schizophrenia by Marjorie L Baldwin is an excruciatingly honest revelation about personal victories and defeats in overcoming our society’s failures to rehabilitate a patient with schizophrenia. Mrs. Baldwin’s incredible courage in exposing her son’s illness offers a diverse understanding of the misery that schizophrenia brings into the lives of patients and their families and friends. A bold protest against discrimination of people affected by this most stigmatized condition, her book may appeal to anyone who aspires to help those craving hope and guidance on the complicated path to sanity. The book itself is designed to serve many purposes: to reduce the strong stigma against the mentally ill, to promote activism for reform in the broken mental health system, and to provide hope for the families. While the previous few decades have held many incredible advancements in the treatment of schizophrenia, efforts to rehabilitate patients back into labor market have not caught up to the promise of new treatments. Marjorie L. Baldwin, a well-respected labor economist who specializes in labor market discrimination against the disabled, starts her book chronicling the history of the mental health system as we know it today, from the age of permanent institutionalization to the creation of effective antipsychotics. She unearths many discrepancies in the delivery of the mental health system, focusing especially on abject failure of community care and prevention, as exemplified by her son’s devastation. The author’s personal and professional experiences offer the reader priceless practical solutions in navigating the contradictory and labyrinthine system. Mrs. Baldwin suggests a valuable tool for rehabilitation in schizophrenia: employment. It permits a degree of confidence and independence, relieves some of the burdens upon families, and provides a new identity as normal people with normal jobs in their eyes and the eyes of society. The successful reintegration of the author’s son into society gives hope to those diagnosed with schizophrenia and their long-suffering caretakers.