帕金森氏病的姑息治疗:神经科学护理的意义。

L. Bunting-Perry
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引用次数: 61

摘要

帕金森病(PD)是一种慢性进行性神经系统疾病,影响着150万美国人。现代成功的药理学和深部脑刺激手术治疗震颤、强直和运动迟缓等运动症状,为PD患者提供了更长的生命和更强的运动功能。然而,在疾病的中晚期,药物治疗的好处减少,运动症状更复杂的治疗。PD的非运动症状在临床环境中很少受到关注,尽管它们可能导致残疾和照顾者负担。推进姑息治疗中心倡导将姑息治疗原则应用于慢性疾病。同样,世界卫生组织重新定义了姑息治疗,将危及生命的疾病也包括在内。帕金森病护理模式(PDMC)采用姑息治疗的原则,为神经科学护士提供了一个模型,用于跨疾病轨迹的个人护理计划。PDMC指导护士为PD患者及其家属减轻痛苦,从诊断到丧亲,重点是预先护理计划。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Palliative care in Parkinson's disease: implications for neuroscience nursing.
Parkinson's disease (PD) is a chronic, progressive neurological disease affecting 1.5 million Americans. The modern success of pharmacology and deep-brain stimulation surgery to treat the motor symptoms of tremor, rigidity, and bradykinesia provide PD patients with longer lives and increased motor functioning. However, in the moderate and advanced stages of disease, the therapeutic benefits of pharmacology diminish and motor symptoms are more complicated to treat. The nonmotor symptoms of PD receive little attention in clinical settings, although they can lead to disability and caregiver burden. The Center to Advance Palliative Care advocates applying the principles of palliative care to chronic disease. Likewise, the World Health Organization has redefined palliative care to include life-threatening illness. The Parkinson's Disease Model of Care (PDMC) takes the precepts of palliative care and presents a model for the neuroscience nurse to use in individual care planning across the trajectory of disease. The PDMC guides the nurse in providing relief from suffering for PD patients and their families, from diagnosis through bereavement, with an emphasis on advance care planning.
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