过早达成共识:法官和律师对基因信息使用的看法

IF 1.3 4区医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY

New Genetics and Society Pub Date : 2023-01-02 DOI:10.1080/14636778.2023.2197583

Fatos Selita, R. Chapman, Y. Kovas, Vanessa Smereczynska, M. Likhanov, Teemu Toivainen

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引用次数: 1

摘要

及时有效地监管基因进步对司法系统提出了挑战。我们使用了一组包含51个条目的数据，来考察那些在这一领域处于最前沿的最高法院法官(N = 73)对主要遗传学相关问题的看法。我们还将他们的观点与来自同一国家(罗马尼亚)的其他司法利益相关者(N = 210)的观点进行了比较。法官在使用遗传数据和技术的观点上比其他群体表现出更多的支持和更少的变化。在一些有争议的问题上，法官之间的共识非常强烈，包括基因编辑;基因发现的专利;以及国家利用基因信息预防犯罪。法官和其他律师认识到有必要修改有关法律。如果没有适当的监管，基因科学就有加剧不平等的风险，而不是充分履行其改善人们生活的承诺。

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Consensus too soon: judges’ and lawyers’ views on genetic information use

Timely effective regulation of genetic advances presents a challenge for justice systems. We used a 51-item battery to examine views on major genetics-related issues of those at the forefront of regulating this area – Supreme Court judges ( N = 73). We also compared their views with those of other justice stakeholders ( N = 210) from the same country (Romania). Judges showed greater endorsement and less variability in views on the use of genetic data and technologies than the other groups. The agreement among the judges was strikingly strong for some controversial issues, including gene editing; patenting of genetic ﬁ ndings; and the State using genetic information for crime prevention. Judges and other lawyers recognized the need for amending the relevant laws. Without appropriate regulation, genetic science has a risk of propelling inequality rather than ful ﬁ lling its promise to improve people ’ s lives.

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来源期刊

New Genetics and Society 生物-生物工程与应用微生物

CiteScore

4.30

自引率

16.70%

发文量

审稿时长

>12 weeks

期刊介绍： New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.