改善以色列阿拉伯妇女遗传筛查管理的绩效

Sara Gabaren, Doina Danaiata, N. Bibu
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引用次数: 0

摘要

本研究考察了以色列阿拉伯妇女进行基因筛查试验的管理情况、以色列阿拉伯妇女对基因筛查试验的反应率、社会经济地位、教育和宗教之间的联系以及研究人群对进行基因筛查试验的反应,以及影响阿拉伯妇女决定在怀孕前进行基因筛查试验的因素。该研究解决了关于阿拉伯妇女坚持孕前基因筛查测试水平的现有意见和看法。这是一项实证定量研究,其结果与阿拉伯妇女的反应有关,阿拉伯妇女被认为是最重要的利益相关者,基因筛选测试系统的客户。调查的主要结果是,妇女非常支持一项有约束力的法律,要求进行体检,要求以体检作为结婚前提,并支持强制实施这些法律。另一个发现是,宗教和穆斯林神职人员对人们进行检测的意愿有很大的影响。这项研究的一个特别贡献是以色列穆斯林法院主席改变了宗教政策,他发布了一项命令和指示穆斯林人口进行测试的法特瓦(宗教命令)。就制定一项促进遗传健康并直接影响孕前检测反应的国家方案提出了建议,该方案的目标群体是以色列的阿拉伯妇女这一主要利益攸关群体。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
IMPROVING THE PERFORMANCE OF THE MANAGEMENT OF GENETIC SCREENING AMONG ARAB WOMEN IN ISRAEL
This study examined the management of the performance of genetic screening tests by Arab women in Israel, the rate of responsiveness to genetic screening tests among Arab women in Israel, and the link between socioeconomic status, education, and religion, and the responsiveness to performing genetic screening tests among the research population, and the factors that influence Arab women’s decision to perform genetic screening tests prior to pregnancy. The study addresses existing opinions and perceptions regarding Arab women’s level of adherence to pre-pregnancy genetic screening tests. This is an empirical quantitative research and its findings related to the responses given by Arab women, considered the most important stakeholder, the clients of the genetic screening test system. The main findings are that women have a great deal of support for a binding law mandating the performance of tests as well as the requirement to predicate marriage on tests, and for enforcing its application. Another finding is that there is a strong influence of religion and Muslim clerics on the willingness to perform tests among the population. . A special contribution of the study is a change in religious policy by the Chairman of the Muslim Court in Israel, who issued a fatwa (religious order) that commands and directs the Muslim population to perform the tests. Recommendations are made concerning the development of a national program that promotes genetic health and directly influences responsiveness to pre-pregnancy tests aimed towards the main stakeholder group that is Arab women in Israel.
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