年轻女孩患牛皮癣的经历:一项描述性现象学研究

F. Yaghoubinia, Farshid Saeedinezhad, A. Keikhaei, F. Piri
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引用次数: 1

摘要

背景:银屑病是一种严重影响患者身心健康和社会健康的炎症性皮肤病。患有这种身体皮肤疾病会对患者的身份构成威胁,并给他们的角色、精神形象和生活方式带来不必要的改变。因此,分析牛皮癣患者的不同经历和看法可以帮助医疗管理人员和决策者采取最有效的应对策略。目的:本研究旨在解释年轻女孩牛皮癣的经历。方法:采用半结构化访谈方法,对2018 - 2019年在扎黑丹医院皮肤科就诊的10名患牛皮癣的年轻女孩进行定性描述现象学研究。采用目的性抽样的方法选取研究对象,并采用Colaizzi的方法对数据进行分析。结果:描述年轻女孩牛皮癣经历的主题包括疾病出现的挑战性,追求无效治疗的不知疲倦,作为社区礼物的社会耻辱以及对不确定未来的恐惧。结论:年轻发病和坚持无效治疗的挑战在患者的经历中非常明显。患者还担心与这种疾病相关的社会耻辱,这可能对他们不确定的未来构成进一步的挑战。根据研究结果,提高公众对牛皮癣的认识和应用心理策略可以有效地解决牛皮癣患者的问题。提高家属陪伴患者治疗的意识也是另一项有效措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences of Young Girls with Psoriasis: A Descriptive Phenomenological Study
Background: Psoriasis is an inflammatory skin disease with detrimental effects on patients’ physical, mental, and social health. Living with this physical skin disorder can pose a threat to patients’ identity and bring about unwanted changes to their role, mental image, and lifestyle. Hence, the analysis of different experiences and perceptions of people living with psoriasis can help healthcare managers and policymakers in adopting the most efficient coping strategies. Objectives: The study aimed to explain the experiences of young girls with psoriasis. Methods: This qualitative descriptive phenomenological study was conducted using in-depth, semi-structured interviews with 10 young girls with psoriasis who referred to the Dermatology Clinics of Zahedan hospitals in 2018 - 2019. The participants were selected using purposive sampling and the data were analyzed by Colaizzi’s method. Results: The themes describing the experiences of young girls with psoriasis included the challenging emergence of disease, indefatigability in pursuit of ineffective treatment, social stigma as a community gift to the patients, and fear of uncertain future. Conclusions: The challenges of the incidence of disease at a young age and insistence on ineffective treatments were highly evident in the experiences of patients. The patients were also concerned about the social stigma associated with the disease, which could pose further challenges to their uncertain future. According to the findings, increasing public awareness of the disease and applying psychological strategies can be effective in addressing the problems of psoriasis patients. Elevating the awareness of families to accompany the patients in treatments can also be another effective measure.
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