人类群体遗传学的叙述:冰岛和俄罗斯的两个案例。

IF 3.5 2区 文学 Q1 COMMUNICATION
Public Understanding of Science Pub Date : 2024-04-01 Epub Date: 2023-11-08 DOI:10.1177/09636625231203481
Vadim Chaly, Olga V Popova
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引用次数: 0

摘要

文章利用冰岛卫生部门数据库和俄罗斯生物库倡议的两个案例,批评了叙事和想象的观点,认为这是塑造公众对遗传学理解和证明全民项目合理性的一种充分而无问题的手段。国家生物库的叙述性表述涉及不受人权普遍规范框架约束的特定想象,促进情感思维,分散公众对有形伦理和社会经济问题的认识和讨论,并损害对科学和技术的信任。在冰岛的案例中,该项目的介绍与国家想象相结合,掩盖了其市场特征,并可能导致生物数据的商品化。在俄罗斯的案例中,“基因主权”和“文明法典”的框架为国家证券化提供了借口。坚持人权规范框架,以辩论和事实的方式公开讨论遗传学,可以对抗这些趋势。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Narrativization of human population genetics: Two cases in Iceland and Russia.

Using the two cases of the Icelandic Health Sector Database and Russian initiatives in biobanking, the article criticizes the view of narratives and imaginaries as a sufficient and unproblematic means of shaping public understanding of genetics and justifying population-wide projects. Narrative representations of national biobanking engage particular imaginaries that are not bound by the universal normative framework of human rights, promote affective thinking, distract the public from recognizing and discussing tangible ethical and socioeconomic issues, and harm trust in science and technology. In the Icelandic case, the presentation of the project in association with national imaginaries concealed its market identity and could lead to the commodification of biodata. In the Russian case, framing in terms of "genetic sovereignty" and "civilizational code" offers pretexts for state securitization. Adherence to normative framework of human rights and public discussion of genetics in an argumentative and factual mode can counter these trends.

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来源期刊
CiteScore
7.30
自引率
9.80%
发文量
80
期刊介绍: Public Understanding of Science is a fully peer reviewed international journal covering all aspects of the inter-relationships between science (including technology and medicine) and the public. Public Understanding of Science is the only journal to cover all aspects of the inter-relationships between science (including technology and medicine) and the public. Topics Covered Include... ·surveys of public understanding and attitudes towards science and technology ·perceptions of science ·popular representations of science ·scientific and para-scientific belief systems ·science in schools
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