Emma Gillette, Winstone Nyandiko, Ashley Chory, Michael Scanlon, Josephine Aluoch, Nandini Choudhury, Daniel Lagat, Celestine Ashimosi, Whitney Biegon, Dennis Munyoro, Janet Lidweye, Jack Nyagaya, Ilene Wilets, Allison DeLong, Rami Kantor, Rachel Vreeman, Violet Naanyu
{"title":"让感染艾滋病毒的儿童和青少年参与非洲国家研究的伦理考虑：系统综述。","authors":"Emma Gillette, Winstone Nyandiko, Ashley Chory, Michael Scanlon, Josephine Aluoch, Nandini Choudhury, Daniel Lagat, Celestine Ashimosi, Whitney Biegon, Dennis Munyoro, Janet Lidweye, Jack Nyagaya, Ilene Wilets, Allison DeLong, Rami Kantor, Rachel Vreeman, Violet Naanyu","doi":"10.1177/15562646231208991","DOIUrl":null,"url":null,"abstract":"<p><p>Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research.</p>","PeriodicalId":50211,"journal":{"name":"Journal of Empirical Research on Human Research Ethics","volume":" ","pages":"346-362"},"PeriodicalIF":1.7000,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11325447/pdf/","citationCount":"0","resultStr":"{\"title\":\"Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries: A Systematic Review.\",\"authors\":\"Emma Gillette, Winstone Nyandiko, Ashley Chory, Michael Scanlon, Josephine Aluoch, Nandini Choudhury, Daniel Lagat, Celestine Ashimosi, Whitney Biegon, Dennis Munyoro, Janet Lidweye, Jack Nyagaya, Ilene Wilets, Allison DeLong, Rami Kantor, Rachel Vreeman, Violet Naanyu\",\"doi\":\"10.1177/15562646231208991\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research.</p>\",\"PeriodicalId\":50211,\"journal\":{\"name\":\"Journal of Empirical Research on Human Research Ethics\",\"volume\":\" \",\"pages\":\"346-362\"},\"PeriodicalIF\":1.7000,\"publicationDate\":\"2023-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11325447/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Empirical Research on Human Research Ethics\",\"FirstCategoryId\":\"98\",\"ListUrlMain\":\"https://doi.org/10.1177/15562646231208991\",\"RegionNum\":4,\"RegionCategory\":\"哲学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/10/23 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"ETHICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Empirical Research on Human Research Ethics","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1177/15562646231208991","RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/10/23 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"ETHICS","Score":null,"Total":0}
Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries: A Systematic Review.
Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research.
期刊介绍：
The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.
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