沉默童年的声音:住院和血液透析对慢性肾病儿童教育的影响

Karina Simões, S. Silva, M. Costa
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引用次数: 2

摘要

住院治疗和/或血液透析门诊护理对慢性肾功能衰竭儿童上学过程的影响可能会损害儿童的发育,导致同样的情境破裂、日常生活的变化、对研究的连续性和以前经历的日常生活的障碍。我们试图分析住院和/或血液透析门诊护理对慢性肾功能衰竭儿童上学过程的影响。这是一项以多个案例为形式的定量、定性、描述性调查。参与者是10名8至12岁的慢性肾功能衰竭儿童,分为三组:三名住院儿童,六名在血液透析门诊护理,一名在圣路易斯一家联邦公立医院的两个护理单元接受两个医院流程。半结构化访谈包括互动历史、自传体书籍和愿望盒。住院和/或血液透析门诊护理对上学过程的最大影响是:由于无法上学而导致的上学延误和未来的承诺(60%);由于医院和学校之间的距离,学校债券损失(20%);缺乏在医院上学的适当资源(10%),难以在离家近的学校入学(10%)。研究得出的结论是,接受血液透析治疗的儿童对上学的影响最大,因为这是一个持续的、不可预测的和不确定的过程,需要更多的学校环境剥夺,甚至缺课,从五个月到四年不等,造成更大的学校赤字,影响学校生活。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Vozes à infância silenciada: impactos da hospitalização e hemodiálise à escolarização de crianças com doença renal crônica
The impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure may be compromising the child's development, causing the same contextual ruptures, changes in daily life, impediments to the continuity of studies and to the previous experienced routine. We tried to analyze the impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure. It was a quanti-qualitative, descriptive survey in the form of multiple cases. The participants were 10 children with chronic renal failure, from 8 to 12 years old, in three contextual groups: three hospitalized children, six in hemodialysis outpatient care and one submitted to the two hospital processes, in two care units of a federal public hospital in Sao Luis. Semi-structured interviews involving interactive history, autobiographical book and wish box were applied individually with them. The greatest impacts of hospitalization and/or hemodialysis outpatient care on the schooling process were: school delays and future commitments due to the impossibility of school attendance (60%); loss of school bond due to the distance between hospital and school (20%); lack of appropriate resources for schooling in the hospital (10%) and difficulties to enroll in a school close to home (10%). It was concluded that the greatest impacts to schooling were manifested by children under hemodialysis treatment because it is a continuous, unpredictable and undetermined process, demanding greater deprivation of the school context or even absences, ranging from five months to four years, causing greater school deficits and compromising school life.
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