多发性硬化诊断中的时空叙事

IF 0.8 4区 医学 Q2 HISTORY & PHILOSOPHY OF SCIENCE
Paula Leverage
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引用次数: 0

摘要

本文探讨了支持多发性硬化症诊断的时空叙事的复杂性,以及在与识字相关的领域中,由于社会认知或社会经济地位的缺陷而处于不利地位的患者的后果。在展示空间和时间叙事在多发性硬化症诊断过程中的重要性的背景下,文章讨论了涉及艺术和人文学科的新治疗策略,并介绍了该疾病的简史和当前的诊断标准,然后讨论了英国和爱尔兰MS协会从20世纪80年代开始的意识和筹款活动,以及汤姆·凯宾斯基的二重奏为一个,灵感来自大提琴家杰奎琳·杜·普莱尔的生活。结论指出,迫切需要提高患者和临床医生对疾病叙述的呈现、解释和分享如何影响健康结果的认识,并就如何调整这些偏见提出了建议。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Narratives of Space and Time in Multiple Sclerosis Diagnosis.

This article examines the complexity of narratives of space and time which support the diagnosis of multiple sclerosis, and the consequences for patients disadvantaged by deficits in social cognition or socioeconomic status in areas relating to literacy. In the context of demonstrating the significance of narratives of space and time in the diagnostic process for multiple sclerosis, the article discusses new strategies for treatment that engage the arts and humanities and presents a brief history of the disease and current diagnostic criteria, before discussing the MS Society of Great Britain and Ireland's awareness and fundraising campaign from the 1980s, and Tom Kempinski's play Duet for One, inspired by the life of cellist Jacqueline du Pré. The conclusion addresses the urgency of heightening patient and clinician awareness of how the presentation, interpretation, and sharing of narrative accounts of disease influence health outcomes and makes suggestions about how to adjust for these biases.

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来源期刊
Perspectives in Biology and Medicine
Perspectives in Biology and Medicine 医学-科学史与科学哲学
CiteScore
1.40
自引率
20.00%
发文量
42
审稿时长
>12 weeks
期刊介绍: Perspectives in Biology and Medicine, an interdisciplinary scholarly journal whose readers include biologists, physicians, students, and scholars, publishes essays that place important biological or medical subjects in broader scientific, social, or humanistic contexts. These essays span a wide range of subjects, from biomedical topics such as neurobiology, genetics, and evolution, to topics in ethics, history, philosophy, and medical education and practice. The editors encourage an informal style that has literary merit and that preserves the warmth, excitement, and color of the biological and medical sciences.
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