癌症病耻感现象的研究:基于理论的研究

Sahar Mohabbat-Bahar, I. Bigdeli, A. Mashhadi, M. Moradi-Joo
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引用次数: 8

摘要

背景:对癌症作为应激事件的适应受到生物、心理和社会因素的影响。目的:本研究旨在探讨耻辱感现象、形成过程及其对癌症患者及其家庭的影响。方法:本研究在扎根理论研究的基础上进行。采用半结构化访谈法对12名癌症患者(7女5男)、1名直系亲属(配偶、父母或兄弟姐妹)和8名肿瘤科工作人员进行访谈。采用有目的的非概率抽样方法选取受试者,分开放编码、轴向编码和选择性编码三步进行数据分析。结果:通过对扎根理论研究的三步分析,得出社会耻感、自我耻感、应对策略和以接受为主要概念的四个概念类别及其子类别。结果表明,柱头形成癌的过程是渐进的,柱头形成癌的尺度不同。结论:通过各种信息来源对病耻感进行综合评估,可以在社会背景下对这一现象有更深刻的理解。这项研究的结果可能会导致有效的治疗方案的发展,以促进社区意识,并通过消除社会背景下这一现象的所有方面来改善患者及其家属的心理健康水平。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Investigation of Stigma Phenomenon in Cancer: A Grounded Theory Study
Background: Adjustment to cancer as a stressful event is affected by bio-psycho-social factors. Objectives: This study aimed to investigate stigma phenomenon, the process of formation, and its impact on cancer patients and their families. Methods: This research was conducted based on the grounded theory study. Semi-structured interview was used with 12 cancer patients (7 women and 5 men), one of the immediate family members (spouse, parent or sibling) and 8 oncology staff members. Participants were selected in a purposeful non-probability sampling method and data analysis was performed in three steps: open coding, axial coding and selective coding. Results: Four conceptual categories with sub-categories were emerged through three-step analysis of the grounded theory study: social stigma, self-stigma, coping strategies and acceptance as a main concept. Results showed gradual process of stigma formation to cancer and its different dimensions. Conclusions: Comprehensive assessment of stigma through various information sources may provide a deep understanding of this phenomenon in social context. The results of this study may lead to development of effective therapeutic protocols for promotion of community awareness, and improvement of mental health levels in patients and their families by eliminating all dimensions of this phenomenon in the context of society.
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