安宁疗护院内与住家缓和疗护设施使用者体验之观察性研究

Chin Jovi, A. A. Aziz
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引用次数: 0

摘要

缓和医疗是一种医疗护理,旨在为患有慢性或晚期疾病的患者提供安慰,从诊断到疾病的整个过程。卫生部的目标是为住院和门诊设施建立姑息治疗单位,然而,由于姑息治疗在马来西亚仍被视为一个新领域,因此没有临终关怀中心的设计指南。本研究从布局、自然、隐私和社会支持四个方面回顾了马来西亚临终关怀医院的患者感知。作为一名临终关怀医院的参与性志愿者,本案例研究采用定性观察和访谈的方法,根据其类型选择了两家临终关怀医院作为案例研究,分别是槟城的纯莲花临终关怀医院和八打灵查亚的亚西西临终关怀医院。研究结果显示,使用者的感知与安宁疗护所提供的隐私有很强的相关性。本研究推断,在规划未来安宁疗护及政策时,隐私权规划应列为优先事项。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Observational Study on User Experience of In-Patient and Domicilliary Palliative Care Facilities Provided at Hospices
: Palliative care is the field of medical care intended to provide comfort to patients who have chronic or terminal disease from the time of diagnosis and throughout the course of the illness. MOH (Ministry of Health) has aimed to establish palliative care units for inpatient and outpatient facilities However, there is no design guidelines for hospice centre due to palliative care is still considered a new field in Malaysia. This study reviews the patients’ perception in hospices in Malaysia based on layout, nature, privacy and social support. As a participatory volunteer of the hospices, this case study is carried out with qualitative observations and interviews on two chosen hospices as case study based on their typology, namely Pure Lotus Hospice, an in-patient facility in Penang and Assisi Palliative Care, a domicilliary facility in Petaling Jaya. The finding shows that there is a strong correlation of user perception to the privacy provided in the hospice. This study infers planning for privacy should be a priority when planning for future hospices as well as policies.
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