父母的观点:义肢和义肢服务在适应儿童上肢差异中的作用

IF 0.7 Q4 REHABILITATION

Technology and Disability Pub Date : 2021-02-24 DOI:10.3233/tad-200300

T. Sims, M. Donovan-Hall, C. Metcalf

{"title":"父母的观点:义肢和义肢服务在适应儿童上肢差异中的作用","authors":"T. Sims, M. Donovan-Hall, C. Metcalf","doi":"10.3233/tad-200300","DOIUrl":null,"url":null,"abstract":"BACKGROUND: The impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences. METHODS: Nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview. RESULTS: Analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’. CONCLUSIONS: Parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.","PeriodicalId":22201,"journal":{"name":"Technology and Disability","volume":" ","pages":""},"PeriodicalIF":0.7000,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3233/tad-200300","citationCount":"1","resultStr":"{\"title\":\"Parental perspective: The role of prostheses and prosthetics services in adjusting to a child’s upper limb difference\",\"authors\":\"T. Sims, M. Donovan-Hall, C. Metcalf\",\"doi\":\"10.3233/tad-200300\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"BACKGROUND: The impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences. METHODS: Nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview. RESULTS: Analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’. CONCLUSIONS: Parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.\",\"PeriodicalId\":22201,\"journal\":{\"name\":\"Technology and Disability\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":0.7000,\"publicationDate\":\"2021-02-24\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.3233/tad-200300\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Technology and Disability\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.3233/tad-200300\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"REHABILITATION\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Technology and Disability","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.3233/tad-200300","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"REHABILITATION","Score":null,"Total":0}

引用次数: 1

摘要

背景：儿童上肢差异的影响可能会超出儿童本身，波及到他们的父母和其他家庭成员。先前的研究发现，震惊、麻木和失落感在父母中很常见，同伴的支持可以缓解压力。目的：本研究旨在探讨肢体差异儿童父母的经历，以及服务和假肢装置在这些经历中的作用。方法：9名肢体差异儿童的父母参加了小组（n=2）或个人（n=7）访谈。结果：对访谈记录的分析揭示了四个主题——“悲伤和内疚”、“作为父母调整工具的假肢”、“支持”和“乐趣和幽默”。结论：父母可以采用应对策略来帮助他们适应孩子的肢体差异，包括使用假肢、获得法定服务和同龄人的支持，以及在家庭中使用乐趣和幽默。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Parental perspective: The role of prostheses and prosthetics services in adjusting to a child’s upper limb difference

BACKGROUND: The impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences. METHODS: Nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview. RESULTS: Analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’. CONCLUSIONS: Parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Technology and Disability Medicine-Rehabilitation

CiteScore

1.40

自引率

20.00%

发文量

期刊介绍： Technology and Disability communicates knowledge about the field of assistive technology devices and services, within the context of the lives of end users - persons with disabilities and their family members. While the topics are technical in nature, the articles are written for broad comprehension despite the reader"s education or training. Technology and Disability"s contents cover research and development efforts, education and training programs, service and policy activities and consumer experiences. - The term Technology refers to assistive devices and services. - The term Disability refers to both permanent and temporary functional limitations experienced by people of any age within any circumstance.