参与者参与和道德数字故事讲述:MOCHA前瞻性研究

IF 1.3 Q2 Social Sciences
A. Gubrium, Sarah E. Lowe, Henry Douglas, L. Scott, D. Buchanan
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引用次数: 4

摘要

非洲裔美国男性继续承担着不成比例的健康差距负担,尤其是慢性病负担。有色人种男性健康意识(MOCHA)前进研究旨在确定一项创新的、社区驱动的计划的有效性,该计划旨在通过减少这些男性患慢性病的已确定社会风险因素来改善35至70岁低收入非裔美国男性的健康和生活质量。该项目利用数字讲故事(DST)鼓励非裔美国男性讲述自己的故事,尤其是与压力、性别角色刻板印象以及身心健康和幸福有关的故事。36名男性被招募参加四个夏令时研讨会中的一个,每个参与者都会创作一个2到3分钟的数字故事。在这篇文章中,我们描述并分析了在与非裔美国男性进行有色人种男性健康意识向前发展研究DST研讨会时出现的三个突出的道德困境。这些困境可以追溯到DST的不同用途、数据收集或干预开发,以及保护和资助参与者之间的权衡。我们讨论解决或规避已识别问题的潜在方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Participant Engagement and Ethical Digital Storytelling: The MOCHA Moving Forward Study
African-American men continue to bear a disproportionate share of the burden of health disparities, in general, and chronic diseases, in particular. The Men of Color Health Awareness (MOCHA) Moving Forward study seeks to determine the effectiveness of an innovative, community-driven program to improve the health and quality of life of low-income African-American men between the ages of 35 to 70 years by reducing identified social risk factors for chronic disease for these men. The project uses digital storytelling (DST) to encourage African-American men to tell their stories, especially related to stress, gender role stereotypes, and mental and physical health and well-being. Thirty-six men were recruited to participate in one of four DST workshops, which resulted in each participant creating a 2- to 3-minute digital story. In this article, we describe and analyze three salient ethical dilemmas that arose in conducting the Men of Color Health Awareness Moving Forward study DST workshops with African-American men. The dilemmas can be traced to the distinct purposes for which DST can be used, data collection or intervention development, and the trade-offs between protecting and patronizing participants. We discuss potential ways to resolve or circumvent the identified issues.
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来源期刊
International Quarterly of Community Health Education
International Quarterly of Community Health Education PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
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期刊介绍: The International Quarterly of Community Health Education is committed to publishing applied research, policy and case studies dealing with community health education and its relationship to social change. Since 1981, this rigorously peer-referred Journal has contained a wide selection of material in readable style and format by contributors who are not only authorities in their field, but can also write with vigor, clarity, and occasionally with humor. Since its introduction the Journal has considered all manuscripts, especially encouraging stimulating articles which manage to combine maximum readability with scholarly standards.
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