{"title":"COVID-19与葡萄牙智力残疾成年人","authors":"Cristina P Albuquerque","doi":"10.6000/2292-2598.2021.09.05.15","DOIUrl":null,"url":null,"abstract":"The COVID-19 pandemic has changed the lives of people all over the world, including in Portugal. This study explores the impact of the pandemic on several life domains of Portuguese adults with Intellectual Disabilities (ID) and their families; identifies the difficulty level in the implementation of the most common preventive measures by adults with ID; addresses the consequences of health authorities’ guidelines in the activities carried out in daycare centers for people with disabilities. A total of thirty-three daycare centers participated; they were attended by a total of 1192 adults at the time the study took place (between the 15th of September 2020 and the 15th of October 2020), and a professional belonging to the daycare center answered an online survey. The results showed that: 1) participants agreed that the pandemic had a negative impact on adults with ID and their families, although only in a percentage of them; 2) in the cases of the adults and families where that negative impact occurred, it was generalized, expressing itself in various life domains; 3) almost all of the preventive measures where considered difficult to apply by adults with ID; 4) the participants agreed that the health authorities' guidelines influenced the activities that were performed in the daycare centers, i.e., there were less activities, and the existing ones were less diversified, more sedentary and occurring indoors more often. The implications of the negative impact of the pandemic on adults with ID, their families, and the services provided have to be addressed.","PeriodicalId":37806,"journal":{"name":"Journal of Intellectual Disability - Diagnosis and Treatment","volume":" ","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2021-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"COVID-19 and Portuguese Adults with Intellectual Disabilities\",\"authors\":\"Cristina P Albuquerque\",\"doi\":\"10.6000/2292-2598.2021.09.05.15\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"The COVID-19 pandemic has changed the lives of people all over the world, including in Portugal. This study explores the impact of the pandemic on several life domains of Portuguese adults with Intellectual Disabilities (ID) and their families; identifies the difficulty level in the implementation of the most common preventive measures by adults with ID; addresses the consequences of health authorities’ guidelines in the activities carried out in daycare centers for people with disabilities. A total of thirty-three daycare centers participated; they were attended by a total of 1192 adults at the time the study took place (between the 15th of September 2020 and the 15th of October 2020), and a professional belonging to the daycare center answered an online survey. The results showed that: 1) participants agreed that the pandemic had a negative impact on adults with ID and their families, although only in a percentage of them; 2) in the cases of the adults and families where that negative impact occurred, it was generalized, expressing itself in various life domains; 3) almost all of the preventive measures where considered difficult to apply by adults with ID; 4) the participants agreed that the health authorities' guidelines influenced the activities that were performed in the daycare centers, i.e., there were less activities, and the existing ones were less diversified, more sedentary and occurring indoors more often. The implications of the negative impact of the pandemic on adults with ID, their families, and the services provided have to be addressed.\",\"PeriodicalId\":37806,\"journal\":{\"name\":\"Journal of Intellectual Disability - Diagnosis and Treatment\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-10-20\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Intellectual Disability - Diagnosis and Treatment\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.6000/2292-2598.2021.09.05.15\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"Social Sciences\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Intellectual Disability - Diagnosis and Treatment","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.6000/2292-2598.2021.09.05.15","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"Social Sciences","Score":null,"Total":0}
COVID-19 and Portuguese Adults with Intellectual Disabilities
The COVID-19 pandemic has changed the lives of people all over the world, including in Portugal. This study explores the impact of the pandemic on several life domains of Portuguese adults with Intellectual Disabilities (ID) and their families; identifies the difficulty level in the implementation of the most common preventive measures by adults with ID; addresses the consequences of health authorities’ guidelines in the activities carried out in daycare centers for people with disabilities. A total of thirty-three daycare centers participated; they were attended by a total of 1192 adults at the time the study took place (between the 15th of September 2020 and the 15th of October 2020), and a professional belonging to the daycare center answered an online survey. The results showed that: 1) participants agreed that the pandemic had a negative impact on adults with ID and their families, although only in a percentage of them; 2) in the cases of the adults and families where that negative impact occurred, it was generalized, expressing itself in various life domains; 3) almost all of the preventive measures where considered difficult to apply by adults with ID; 4) the participants agreed that the health authorities' guidelines influenced the activities that were performed in the daycare centers, i.e., there were less activities, and the existing ones were less diversified, more sedentary and occurring indoors more often. The implications of the negative impact of the pandemic on adults with ID, their families, and the services provided have to be addressed.
期刊介绍:
The journal aims to describe the research work on Intellectual Disability Diagnosis and Treatment in children and adults. It covers not just the technical aspects of the procedures in prenatal, newborn and postnatal screening, but also the impact which the process of testing and treatment has on individuals, parents, families and public-health in general. The journal seeks to publish, but is a not restricted to, Genetic Intellectual Disability Syndromes, using a range of approaches from medicine, psychiatry, psychology, pharmacy, biology, epidemiology, bioinformatics, biopharmaceutical to association and population studies as well as sociological, ethical, philosophical, legal and quality control issues with the ultimate goal of advancing the knowledge on the diagnosis, prevention, and treatment of the Intellectual Disabilities. The journal publishes original research articles, review articles, case reports and short communications(Letter article).