{"title":"社会学健康研究中的数据保护:关于新监管环境挑战的批判性叙述","authors":"Hélder Raposo, Sara Melo, Catarina Egreja","doi":"10.1177/13607804221107676","DOIUrl":null,"url":null,"abstract":"The recent implementation of the General Data Protection Regulation (GDPR) establishes a set of formal requirements that reinforce personal data protection, namely, those concerning the collection, treatment, and dissemination of data on research participants. With the application of this new legal provision at the European level, new types of restrictions are emerging, whose nature and reach intensify the tension between demands for privacy and scientific freedom in research. In this article, we take as a reference an ongoing research taking place in Portugal, in the field of Sociology of Health, concerning the consumption of medicines by professionals exposed to high-performance pressure. Our main objective is to identify and analyse the implications of regulatory challenges faced in the research process and how the researchers managed and overcame them. We present a critical narrative that sheds light on the nature of the choices taken while also assessing the practical implications for the operationalisation of the research. We conclude by noting that, despite the benefits that may flow from the application of GDPR, the new requirements regarding the protection of personal data may override the ethical principles of scientific research and strengthen regulatory restrictions on conducting research. In the research concerned, the significant practical implications were indirect access to participants, a more time-consuming process in terms of participant adherence and a temporal discrepancy between the different stages of recruitment.","PeriodicalId":47694,"journal":{"name":"Sociological Research Online","volume":"27 1","pages":"1060 - 1076"},"PeriodicalIF":1.2000,"publicationDate":"2022-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Data Protection in Sociological Health Research: A Critical Narrative about the Challenges of a New Regulatory Landscape\",\"authors\":\"Hélder Raposo, Sara Melo, Catarina Egreja\",\"doi\":\"10.1177/13607804221107676\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"The recent implementation of the General Data Protection Regulation (GDPR) establishes a set of formal requirements that reinforce personal data protection, namely, those concerning the collection, treatment, and dissemination of data on research participants. With the application of this new legal provision at the European level, new types of restrictions are emerging, whose nature and reach intensify the tension between demands for privacy and scientific freedom in research. In this article, we take as a reference an ongoing research taking place in Portugal, in the field of Sociology of Health, concerning the consumption of medicines by professionals exposed to high-performance pressure. Our main objective is to identify and analyse the implications of regulatory challenges faced in the research process and how the researchers managed and overcame them. We present a critical narrative that sheds light on the nature of the choices taken while also assessing the practical implications for the operationalisation of the research. We conclude by noting that, despite the benefits that may flow from the application of GDPR, the new requirements regarding the protection of personal data may override the ethical principles of scientific research and strengthen regulatory restrictions on conducting research. In the research concerned, the significant practical implications were indirect access to participants, a more time-consuming process in terms of participant adherence and a temporal discrepancy between the different stages of recruitment.\",\"PeriodicalId\":47694,\"journal\":{\"name\":\"Sociological Research Online\",\"volume\":\"27 1\",\"pages\":\"1060 - 1076\"},\"PeriodicalIF\":1.2000,\"publicationDate\":\"2022-09-16\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Sociological Research Online\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1177/13607804221107676\",\"RegionNum\":3,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"SOCIOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Sociological Research Online","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1177/13607804221107676","RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"SOCIOLOGY","Score":null,"Total":0}
Data Protection in Sociological Health Research: A Critical Narrative about the Challenges of a New Regulatory Landscape
The recent implementation of the General Data Protection Regulation (GDPR) establishes a set of formal requirements that reinforce personal data protection, namely, those concerning the collection, treatment, and dissemination of data on research participants. With the application of this new legal provision at the European level, new types of restrictions are emerging, whose nature and reach intensify the tension between demands for privacy and scientific freedom in research. In this article, we take as a reference an ongoing research taking place in Portugal, in the field of Sociology of Health, concerning the consumption of medicines by professionals exposed to high-performance pressure. Our main objective is to identify and analyse the implications of regulatory challenges faced in the research process and how the researchers managed and overcame them. We present a critical narrative that sheds light on the nature of the choices taken while also assessing the practical implications for the operationalisation of the research. We conclude by noting that, despite the benefits that may flow from the application of GDPR, the new requirements regarding the protection of personal data may override the ethical principles of scientific research and strengthen regulatory restrictions on conducting research. In the research concerned, the significant practical implications were indirect access to participants, a more time-consuming process in terms of participant adherence and a temporal discrepancy between the different stages of recruitment.
期刊介绍:
Sociological Research Online has been published quarterly online since March 1996. Articles published in the journal are peer-reviewed by a distinguished Editorial Board and qualify for inclusion in the UK Research Assessment Exercise. Sociological Research Online was established under the Electronic Libraries Programme (eLib). When funding ceased in September 1998, Sociological Research Online introduced institutional subscriptions in order to be able to continue publishing high quality sociology. The journal is still available without charge to individuals accessing it from non-institutional networks.