GDPR下的基因数据处理:未解决的利益冲突

Petro Sukhorolskyi, Valeriia Hutsaliuk
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引用次数: 0

摘要

在过去的几十年里,遗传学和生物信息学领域的发展导致各种公司和机构对人类基因数据的处理显著增加。这导致通过了一些国际文件,并出现了关于保护遗传数据的法律规范。本文探讨了欧洲联盟如何以及在多大程度上保护数据主体在处理基因数据方面的利益和权利。结论是,根据GDPR,这项任务是通过将基因数据分类为敏感数据、依赖匿名和假名以及引入数据保护影响评估程序来实现的。然而,鉴于基因数据与其他类别的个人数据的独特性,这些措施不能被视为充分和有效。该文件认为,目前的欧盟数据保护立法为基因研究创造了有利条件,从而确保了特定的公共利益,但没有建立一个适用于该领域潜在威胁和数据主体权利风险的基因数据处理特殊制度。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Processing of Genetic Data under GDPR: Unresolved Conflict of Interests
Over the last decades, developments in the fields of genetics and bioinformatics caused a marked increase in the processing of human genetic data by various companies and institutions. This results in the adoption of several international documents and the emergence of legal norms on the protection of genetic data. The paper examines how and to what extent the interests and rights of the data subject with regard to the processing of genetic data are protected in the European Union. It is concluded that under the GDPR this task is implemented through classifying genetic data as sensitive, reliance on anonymisation and pseudonymisation, as well as introduction of the procedure of data protection impact assessment. Nevertheless, given the unique characteristics of genetic data distinguishing them from other categories of personal data, these measures cannot be regarded as sufficient and effective. The paper argues that current EU data protection legislation creates favourable conditions for genetic research, thereby ensuring particular public interests, but does not establish a special regime for genetic data processing appropriate to potential threats in this field and risks to the rights of data subjects.
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