照顾者离散选择实验的伦理考虑。

IF 1.7 4区哲学 Q2 ETHICS

Journal of Empirical Research on Human Research Ethics Pub Date : 2022-10-01 Epub Date: 2022-07-18 DOI:10.1177/15562646221112339

Judy Illes, Ashley Lawson, Patrick J McDonald

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引用次数: 0

摘要

我们讨论的研究伦理挑战经验，而运行的离散选择实验管理的儿童治疗顽固性儿童癫痫的照顾者。我们强调了围绕离散选择实验范式的研究设计的伦理考虑，这涉及到人口的脆弱性和照顾负担，参与的利益与负担的不平衡，以及文化意义和普遍性的局限性。

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Ethical Considerations for Discrete Choice Experiments with Caregivers.

We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.

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来源期刊

Journal of Empirical Research on Human Research Ethics 医学-医学：伦理

CiteScore

3.50

自引率

7.70%

发文量

审稿时长

>12 weeks

期刊介绍： The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.