个体对肝硬化的认知:一项定性研究。

Shiva Ghasemniaye Namaghi, Eesa Mohammadi, Behzad Hatami
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引用次数: 1

摘要

肝硬化是一种慢性和相对常见的疾病,在大多数情况下没有明确的治疗方法。很少有研究调查受影响的个人对这种疾病的看法。本定性研究旨在描述个体(n = 27)肝硬化对他们的疾病的看法。访谈资料采用常规内容分析法进行分析。数据分析揭示了两个主要主题:第一个主题是“对肝硬化的感知敏感性”,其特点是担心疾病传播给他人,担心将症状视为参考医疗中心的原因,担心向他人隐瞒疾病,对患病感到悔恨或内疚,以及对疾病原因的个人信念。第二个主题是“肝硬化的感知严重性”,其特征是由于紧张和压力而感到疾病恶化,由于恼人症状持续而感到不适,由于腹水而感到不适,以及等待肝移植时的恐惧和希望。研究结果表明,人们意识到了肝硬化的威胁。这种感知到的威胁及其特征可以帮助护士和其他医疗保健提供者在照顾肝硬化患者时意识到这种感知。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Individuals' Perceptions of Liver Cirrhosis: A Qualitative Study.

Liver cirrhosis is a chronic and relatively common disease without a definitive cure in most cases. Few studies have investigated affected individuals perceptions of the disease. This qualitative study aimed to describe the perceptions of individuals ( n = 27) with liver cirrhosis toward their disease. Interview data was analyzed using conventional content analysis. Data analysis revealed two main themes: the first theme was "perceived sensitivity to the cirrhosis," which was characterized by concerns about disease transmission to others, concerns about seeing symptoms as a reason in referring to medical centers, hiding disease from others, feeling remorse or guilt in having disease, and personal beliefs about cause of disease. The second theme was the "perceived severity of the cirrhosis," which was characterized by feelings of disease exacerbation due to tension and stress, discomfort due to continuation of annoying symptoms, discomfort due to ascites, and fear and hope while waiting for liver transplantation. The findings indicate a perceived threat from liver cirrhosis. Such perceived threats and their characteristics could help nurses and other healthcare providers to be aware of this perception in their care of individuals living with liver cirrhosis.

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