如何与患有癌症的儿童和青少年谈论精神问题?建立会话模型。

IF 1.9 3区医学 Q2 NURSING

Journal of Pediatric Oncology Nursing Pub Date : 2021-03-01 Epub Date: 2020-12-03 DOI:10.1177/1043454220975703

Willyane de Andrade Alvarenga, Ana Carolina Andrade Biaggi Leite, Amanda Aparecida Menochelli, Rebecca Ortiz La Banca, Paula Saud De Bortoli, Rhyquelle Rhibna Neris, Lucila Castanheira Nascimento

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引用次数: 6

摘要

与患有癌症的儿童和青少年谈论灵性是一个挑战。本研究旨在开发和评估一种对话模式，用于与患有癌症的儿童和青少年进行精神治疗。这是一项方法研究，采用系统的方法，分为三个阶段:(a)审查文献以选择照片和指导问题，(b)使用专家委员会评估照片和预选问题，以及(c)与儿童和青少年进行认知访谈以测试方法。专家委员会对20张照片及其各自的指导问题进行了评估和选择。15名因癌症住院的儿童和青少年测试了灵性对话模式，并表达了他们对生活和疾病的感受、价值观、信仰、恐惧和意义。对话模式的实施既有助于临床实践，促进对儿科患者精神维度的护理，也有助于对涉及儿童的精神的定性研究。

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How to Talk to Children and Adolescents With Cancer About Spirituality? Establishing a Conversation Model.

Talking to children and adolescents with cancer about spirituality is a challenge. This study aimed to develop and evaluate a conversation model for a spiritual approach with children and adolescents with cancer. It was a methodological study with a systematic approach in three stages: (a) review of the literature for the selection of photographs and guiding questions, (b) using an expert committee to evaluate photographs and preselected questions, and (c) cognitive interview with children and adolescents to test the methodology. The expert committee evaluated and selected 20 photos and their respective guiding questions. Fifteen children and adolescents hospitalized with cancer tested the spirituality conversation model and expressed feelings, values, beliefs, fears, and the meaning they give to life and illness. The implementation of the conversation model can contribute both to the clinical practice, facilitating care for the spiritual dimension of pediatric patients, and to qualitative research on spirituality involving children.

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来源期刊

Journal of Pediatric Oncology Nursing 医学-护理

CiteScore

3.10

自引率

0.00%

发文量

审稿时长

>12 weeks

期刊介绍： SPECIAL PATIENTS NEED SPECIAL NURSES Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing. The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care. Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include: Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis Combination therapies Hematologic and immunologic topics Holistic, family-centered supportive care Improvement of quality of life for children and adolescents with cancer Management of side effects from surgery, chemotherapy, and radiation Management of specific symptoms/diseases/co-infections Medication tolerance differences in children and adolescents Pain control Palliative and end of life care issues Pharmacologic agents for pediatrics/clinical trial results Psychological support for the patient, siblings, and families The dynamic articles cover a wide range of specific nursing concerns, including: Advanced practice issues Clinical issues Clinical proficiency Conducting qualitative and quantitative research Developing a core curriculum for pediatric hematology/oncology nursing Encouraging active patient participation Ethical issues Evaluating outcomes Professional development Stress management and handling your own emotions Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference. Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today! This journal is a member of the Committee on Publication Ethics (COPE).