从被动的病人到积极的伴侣:我的帕金森病之旅。

Q2 Medicine
Richard Higgins, Maureen Hennessey
{"title":"从被动的病人到积极的伴侣:我的帕金森病之旅。","authors":"Richard Higgins,&nbsp;Maureen Hennessey","doi":"10.2196/12566","DOIUrl":null,"url":null,"abstract":"<p><p>This patient narrative by Richard Higgins with Maureen Hennessey describes Richard's journey of learning to live with a chronic and progressive illness. It begins with Richard's diagnosis and shares many of the lessons learned along the way. Richard copes daily with this condition, relying on the support and expertise of his wife and the treatment team he has assembled while also encouragingly drawing on the skills and knowledge gained as a longtime running coach. A clinical commentary is provided at the article's conclusion, drafted by Richard's friend, Maureen Hennessey, PhD, CPCC, CPHQ, offering observations about the relevance of Richard's story to participatory medicine and suggesting pertinent resources for patients and health care professionals.</p>","PeriodicalId":36208,"journal":{"name":"Journal of Participatory Medicine","volume":"12 2","pages":"e12566"},"PeriodicalIF":0.0000,"publicationDate":"2020-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434067/pdf/","citationCount":"0","resultStr":"{\"title\":\"From Passive Patient to Engaged Partner: My Journey With Parkinson Disease.\",\"authors\":\"Richard Higgins,&nbsp;Maureen Hennessey\",\"doi\":\"10.2196/12566\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>This patient narrative by Richard Higgins with Maureen Hennessey describes Richard's journey of learning to live with a chronic and progressive illness. It begins with Richard's diagnosis and shares many of the lessons learned along the way. Richard copes daily with this condition, relying on the support and expertise of his wife and the treatment team he has assembled while also encouragingly drawing on the skills and knowledge gained as a longtime running coach. A clinical commentary is provided at the article's conclusion, drafted by Richard's friend, Maureen Hennessey, PhD, CPCC, CPHQ, offering observations about the relevance of Richard's story to participatory medicine and suggesting pertinent resources for patients and health care professionals.</p>\",\"PeriodicalId\":36208,\"journal\":{\"name\":\"Journal of Participatory Medicine\",\"volume\":\"12 2\",\"pages\":\"e12566\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2020-04-16\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434067/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Participatory Medicine\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.2196/12566\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"Medicine\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Participatory Medicine","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.2196/12566","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"Medicine","Score":null,"Total":0}
引用次数: 0

摘要

理查德·希金斯和莫琳·亨尼西的这篇病人叙事描述了理查德学会与慢性进行性疾病共存的旅程。它从理查德的诊断开始,并分享了一路上学到的许多经验教训。理查德每天都在应对这种情况,依靠他妻子和他组建的治疗团队的支持和专业知识,同时也令人鼓舞地借鉴了作为一名长期跑步教练所获得的技能和知识。文章的结论部分提供了临床评论,由Richard的朋友,Maureen Hennessey博士,CPCC, CPHQ起草,提供了关于Richard的故事与参与式医学的相关性的观察,并为患者和卫生保健专业人员提供了相关资源。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
From Passive Patient to Engaged Partner: My Journey With Parkinson Disease.

This patient narrative by Richard Higgins with Maureen Hennessey describes Richard's journey of learning to live with a chronic and progressive illness. It begins with Richard's diagnosis and shares many of the lessons learned along the way. Richard copes daily with this condition, relying on the support and expertise of his wife and the treatment team he has assembled while also encouragingly drawing on the skills and knowledge gained as a longtime running coach. A clinical commentary is provided at the article's conclusion, drafted by Richard's friend, Maureen Hennessey, PhD, CPCC, CPHQ, offering observations about the relevance of Richard's story to participatory medicine and suggesting pertinent resources for patients and health care professionals.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Journal of Participatory Medicine
Journal of Participatory Medicine Medicine-Medicine (miscellaneous)
CiteScore
3.20
自引率
0.00%
发文量
8
审稿时长
12 weeks
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信