处理慢性疾病:伊朗多发性硬化症患者家庭的经验-定性研究。

IF 2.2 Q3 CLINICAL NEUROLOGY
Multiple Sclerosis International Pub Date : 2017-01-01 Epub Date: 2017-09-07 DOI:10.1155/2017/9243161
Hossein Ebrahimi, Hadi Hasankhani, Hossein Namdar, Esmail Khodadadi, Marjaneh Fooladi
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引用次数: 14

摘要

背景:今天,家庭成员在生病期间互相照顾和支持。特别是慢性疾病,如多发性硬化症,家庭更多地参与照顾和支持他们的病人,所以他们使用几种策略来应对这种情况。本研究的目的是探讨伊朗多发性硬化症患者的家庭照顾者的应对策略。方法:这是一项定性研究,通过18名多发性硬化症患者的家庭照顾者进行。采用有目的的抽样方法。数据通过在伊朗大不里士多发性硬化症协会和医院进行的半结构化和深度访谈收集。采用定性内容分析法对收集到的资料进行分析。结果:从访谈中得出五个主要类别:“使用灵性”,“带着希望生活”,“体验持久性和稳定性”,“寻求支持”和“寻求替代治疗”。结论。这项研究的发现可以帮助为家庭提供支持,帮助他们应对照顾多发性硬化症患者的影响。通过使用这些结果,卫生系统管理人员和专业人员能够适当地支持患者及其家属,以改善他们的生活质量并减轻疾病并发症。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Dealing with Chronic Illness: Experiences of Iranian Families of Persons with Multiple Sclerosis-A Qualitative Study.

Background: Today family members are providing care and support to each other during illness. In particular, in chronic illness, such as multiple sclerosis, the families are more involved in caring for and supporting their patients, so they use several strategies to cope with this situation. The purpose of this study was to explore the coping strategies in family caregivers of persons with multiple sclerosis in Iran.

Methods: This is a qualitative study that was conducted through 18 family caregivers of persons with multiple sclerosis. A purposeful sampling method was used. Data were collected through semistructured and in-depth interviews conducted in Multiple Sclerosis Society and hospitals of Tabriz in Iran. The collected data was analyzed according to qualitative content analysis.

Results: Five main categories were elicited from interviews: "using spirituality," "living with hope," "experiencing persistence and stability," "seeking support," and "seeking alternative treatments." Conclusion. The study findings can help to inform the support given to families to help them cope with the effects of caring for someone with multiple sclerosis. Health system managers and professionals by using these results are able to support patients and their families appropriately in order to improve their quality of life and alleviate the complications of disease.

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来源期刊
Multiple Sclerosis International
Multiple Sclerosis International CLINICAL NEUROLOGY-
自引率
0.00%
发文量
6
审稿时长
15 weeks
期刊介绍: Multiple Sclerosis International is a peer-reviewed, Open Access journal that publishes original research articles, review articles, and clinical studies related to all aspects of multiple sclerosis, including clinical neurology, neuroimaging, neuropathology, therapeutics, genetics, neuroimmunology, biomarkers, psychology and neurorehabilitation.
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