患者和医生小组会议:一种探索严重哮喘后台的创新方式。

IF 2.3
Multidisciplinary Respiratory Medicine Pub Date : 2022-09-05 eCollection Date: 2022-01-12 DOI:10.4081/mrm.2022.854
Marco Caminati, Gianna Camiciottoli, Ilaria Baiardini, Leonardo Antonicelli, Bianca Beghè, Nunzio Crimi, Elisabetta Favero, Anna Agnese Stanziola, Giuseppe Valenti, Dina Visca, Stefano Del Giacco
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引用次数: 0

摘要

严重哮喘患者的生活受到疾病的严重影响,这对个人和职业选择或一般生活方式都有影响。尽管有可用的工具来帮助医生调查患者报告的结果,但仍需要一种更加标准化和结构化的方法,将生活质量评估和患者的情绪纳入常规临床互动。我们特此报告使用积极倾听和洞察方法,通过专门的面对面会议,包括一组患者及其医生,护理人员和外部调解人,来了解严重哮喘患者的情绪。2019年,意大利17个严重哮喘专科转诊中心组织了“患者洞察会议”倡议,涉及149名患者。收集了与4个不同项目有关的见解,由外部主持人组成的工作队编写了一份一般性报告,其中包括参与中心的建议。这种由患者和医生共同参与的小组会议的体验代表了一种调查哮喘患者真实生活经历和情绪的创新方式,突出了与患者疾病经历相关的未满足需求,这些需求需要纳入严重哮喘患者的管理策略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Patients and doctors group meetings: an innovative way to explore severe asthma backstage.

Patients and doctors group meetings: an innovative way to explore severe asthma backstage.

Severe asthma patients' life is heavily influenced by the disease, which has impact on personal and professional choices or general lifestyle. Despite the available tools to help physicians investigating the patient-reported outcomes there is a need for a more standardised and structured approach to include the evaluation of quality of life together with the emotions of patients into the routine clinical interaction. We hereby report the use of an active listening and insight approach to understand the emotions of patients with severe asthma through dedicated in-person meetings involving a group of patients with their doctors, caregivers and an external moderator. The initiative "Patients insight meeting" was organized within 17 specialist referral centres for severe asthma in Italy in 2019 and involved 149 patients. Insights related to 4 different items were collected and a task force composed by the external moderators produced a general report including the suggestions from the participating centres. This experience of group-meetings involving both patients and doctors together represents an innovative way to investigate real life experience and the emotions of asthmatic patients, highlighting unmet needs related to patient's experience of his/her disease that need to be included in severe asthmatics' management strategy.

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来源期刊
Multidisciplinary Respiratory Medicine
Multidisciplinary Respiratory Medicine Medicine-Pulmonary and Respiratory Medicine
自引率
0.00%
发文量
23
期刊介绍: Multidisciplinary Respiratory Medicine is the official journal of the Italian Respiratory Society - Società Italiana di Pneumologia (IRS/SIP). The journal publishes on all aspects of respiratory medicine and related fields, with a particular focus on interdisciplinary and translational research. The interdisciplinary nature of the journal provides a unique opportunity for researchers, clinicians and healthcare professionals across specialties to collaborate and exchange information. The journal provides a high visibility platform for the publication and dissemination of top quality original scientific articles, reviews and important position papers documenting clinical and experimental advances.
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