有效的假名化和明确的公共利益声明,以确保共享卫生数据用于研究、质量改进和卫生服务管理的好处大于风险。

Simon de Lusignan
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引用次数: 5

摘要

本刊强烈支持数据共享,以支持研究和质量改进。然而,这需要以一种确保收益远远大于风险的方式进行,并且至关重要的是使用能够激发公众和专业信心的方法-需要强大的假名来实现这一点。使用常规数据进行研究的理由已经很充分,而且很可能也是为了提高质量;然而,我们需要更明确的机制来检验我们如何服务于公众利益。如果我们要维持患者和公众的信任,特别是在英国国家医疗服务体系(nhs),确保公众利益得到服务是至关重要的,因为现实政治是患者可以选择退出数据共享。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Effective pseudonymisation and explicit statements of public interest to ensure the benefits of sharing health data for research, quality improvement and health service management outweigh the risks.

This journal strongly supports the sharing of data to support research and quality improvement. However, this needs to be done in a way that ensures the benefits vastly outweigh the risks, and vitally using methods which are inspire both public and professional confidences--robust pseudonymisation is needed to achieve this. The case for using routine data for research has already been well made and probably also for quality improvement; however, clearer mechanisms are needed of how we test that the public interest is served. Ensuring that the public interest is served is essential if we are to maintain patients' and public's trust, especially in the English National Health Service where the realpolitik is that patients can opt out of data sharing.

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