沟通困难时不要放弃:阿尔茨海默氏症和痴呆症患者护理人员的在线健康建议。

IF 1.2 Q4 HEALTH POLICY & SERVICES
HOME HEALTH CARE SERVICES QUARTERLY Pub Date : 2021-04-01 Epub Date: 2021-04-02 DOI:10.1080/01621424.2021.1907266
Olivia E Jones, Elizabeth S Parks
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引用次数: 0

摘要

美国有1600万人无偿照顾阿尔茨海默氏症或痴呆症患者。尽管照顾者投资与个人和关系利益有关,但也存在情感、精神、关系和身体成本。本研究为阿尔茨海默氏症和痴呆症患者的非专业护理人员探索了在线健康建议,结果为非专业护理人员提供了332个在线资源的信息支持。虽然有能力的沟通直接影响照顾关系的健康,但这些文本中只有39篇提供了与沟通策略相关的建议。对这39个来源的专题分析得出了1,024条离散的护理建议,这些建议涉及三个总体主题:日常生活、护理对象的福祉和护理者的自我护理。我们检查照顾者自我照顾的主题,以了解信息支持提供给照顾者。这些自我护理建议主题表明,需要有意地关注非专业护理人员的家庭健康质量,以及沟通影响他们日常生活的方式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Don't give up when communication is difficult: Online well-being advice for caregivers of people with Alzheimer's and dementia.

Sixteen million people in the United States are unpaid caregivers to people with Alzheimer's or dementia. Although caregiver investment is associated with personal and relational benefits, there are also emotional, mental, relational, and physical costs. This study explores online well-being advice for nonprofessional caregivers of people with Alzheimer's and dementia, resulting in 332 online resources that offer informational support for nonprofessional caregivers. Although competent communication directly impacts the well-being of caregiving relationships, only 39 of these texts offered advice related to communication strategies. Thematic analysis of these 39 sources resulted in 1,024 discrete pieces of caregiver advice related to three overarching themes: Daily Routine, Care Recipient Well-Being, and Caregiver Self-Care. We examine the Caregiver Self-Care theme to understand informational support available to caregivers. These self-care advice themes reveal a need for intentional focus on the home health quality of nonprofessional caregivers about ways that communication impacts their everyday lives.

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来源期刊
HOME HEALTH CARE SERVICES QUARTERLY
HOME HEALTH CARE SERVICES QUARTERLY HEALTH POLICY & SERVICES-
CiteScore
2.40
自引率
0.00%
发文量
18
期刊介绍: Home Health Care Services Quarterly continues to publish important research on the cutting edge of home care and alternatives to long-term institutional care for the elderly, disabled, and other population groups that use in-home health care and other community services. The journal is aimed toward service providers and health care specialists involved with health care financing, evaluation of services, organization of services, and public policy issues.
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