评估脑瘫儿童的生活质量：一项基于家长报告的问卷研究

Q1 Medicine

Journal of oral biology and craniofacial research Pub Date : 2025-09-08 DOI:10.1016/j.jobcr.2025.08.034

Siddhesh Ajgaonkar, Amarshree A. Shetty

{"title":"评估脑瘫儿童的生活质量：一项基于家长报告的问卷研究","authors":"Siddhesh Ajgaonkar, Amarshree A. Shetty","doi":"10.1016/j.jobcr.2025.08.034","DOIUrl":null,"url":null,"abstract":"<div><div>The quality of life (QoL) of children with cerebral palsy (CP) needs to be assessed using a CP-specific questionnaire, such as the CP-QoL questionnaire. This study was conducted to assess the QoL of children with CP using the CP-QoL questionnaire and correlate QoL scores with patient demographics. The caregivers of 155 children (3–15 years) attending the NITTE centre of AB Shetty Memorial Institute of Dental Sciences were enrolled in the study. The caregivers were given the Kannada translation of the parent-proxy version of the CP-QoL questionnaire. Analysis and scoring were carried out using the prescribed methodology. For validation, Cronbach's alpha was computed for every question. Analysis was done on the impact of demographic profile on QoL. A CP-QoL survey was given 155 caregivers of children with cerebral palsy (96 male and 61 female). The youngsters under study had an overall QoL score of 25.24 ± 6.14. The children's QoL was significantly impacted by age (P < 0.05). The QoL was not substantially impacted by gender (P > 0.05). Overall, reliability and internal consistency were determined to be good. (Alpha Cronbach's > 0.7). Children with CP have a lower quality of life as assessed using the CP-QoL questionnaire.</div></div>","PeriodicalId":16609,"journal":{"name":"Journal of oral biology and craniofacial research","volume":"15 6","pages":"Pages 1485-1489"},"PeriodicalIF":0.0000,"publicationDate":"2025-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Assessment of quality of life in children with cerebral palsy: A parent-reported questionnaire-based study\",\"authors\":\"Siddhesh Ajgaonkar, Amarshree A. Shetty\",\"doi\":\"10.1016/j.jobcr.2025.08.034\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><div>The quality of life (QoL) of children with cerebral palsy (CP) needs to be assessed using a CP-specific questionnaire, such as the CP-QoL questionnaire. This study was conducted to assess the QoL of children with CP using the CP-QoL questionnaire and correlate QoL scores with patient demographics. The caregivers of 155 children (3–15 years) attending the NITTE centre of AB Shetty Memorial Institute of Dental Sciences were enrolled in the study. The caregivers were given the Kannada translation of the parent-proxy version of the CP-QoL questionnaire. Analysis and scoring were carried out using the prescribed methodology. For validation, Cronbach's alpha was computed for every question. Analysis was done on the impact of demographic profile on QoL. A CP-QoL survey was given 155 caregivers of children with cerebral palsy (96 male and 61 female). The youngsters under study had an overall QoL score of 25.24 ± 6.14. The children's QoL was significantly impacted by age (P < 0.05). The QoL was not substantially impacted by gender (P > 0.05). Overall, reliability and internal consistency were determined to be good. (Alpha Cronbach's > 0.7). Children with CP have a lower quality of life as assessed using the CP-QoL questionnaire.</div></div>\",\"PeriodicalId\":16609,\"journal\":{\"name\":\"Journal of oral biology and craniofacial research\",\"volume\":\"15 6\",\"pages\":\"Pages 1485-1489\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-09-08\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of oral biology and craniofacial research\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S2212426825002131\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"Medicine\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of oral biology and craniofacial research","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2212426825002131","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"Medicine","Score":null,"Total":0}

引用次数: 0

摘要

脑瘫儿童的生活质量（QoL）需要使用特定于脑瘫的问卷进行评估，如CP-QoL问卷。本研究采用CP-QoL问卷评估CP患儿的生活质量，并将生活质量评分与患者人口统计学特征相关联。在AB Shetty纪念牙科科学研究所NITTE中心的155名儿童（3-15岁）的护理人员被纳入研究。给照顾者提供父母-代理版CP-QoL问卷的卡纳达语译文。采用规定的方法进行分析和评分。为了验证，对每个问题都计算了Cronbach's alpha。分析了人口结构对生活质量的影响。对155名脑瘫患儿护理人员（男96名，女61名）进行CP-QoL调查。研究对象的总体生活质量得分为25.24±6.14。年龄对儿童生活质量有显著影响（P < 0.05）。生活质量不受性别的显著影响（P > 0.05）。总体而言，可靠性和内部一致性被确定为良好。（Alpha Cronbach's > 0.7）。使用CP- qol问卷评估CP患儿的生活质量较低。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Assessment of quality of life in children with cerebral palsy: A parent-reported questionnaire-based study

The quality of life (QoL) of children with cerebral palsy (CP) needs to be assessed using a CP-specific questionnaire, such as the CP-QoL questionnaire. This study was conducted to assess the QoL of children with CP using the CP-QoL questionnaire and correlate QoL scores with patient demographics. The caregivers of 155 children (3–15 years) attending the NITTE centre of AB Shetty Memorial Institute of Dental Sciences were enrolled in the study. The caregivers were given the Kannada translation of the parent-proxy version of the CP-QoL questionnaire. Analysis and scoring were carried out using the prescribed methodology. For validation, Cronbach's alpha was computed for every question. Analysis was done on the impact of demographic profile on QoL. A CP-QoL survey was given 155 caregivers of children with cerebral palsy (96 male and 61 female). The youngsters under study had an overall QoL score of 25.24 ± 6.14. The children's QoL was significantly impacted by age (P < 0.05). The QoL was not substantially impacted by gender (P > 0.05). Overall, reliability and internal consistency were determined to be good. (Alpha Cronbach's > 0.7). Children with CP have a lower quality of life as assessed using the CP-QoL questionnaire.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Journal of oral biology and craniofacial research Medicine-Otorhinolaryngology

CiteScore

4.90

自引率

0.00%

发文量

133

审稿时长

167 days

期刊介绍： Journal of Oral Biology and Craniofacial Research (JOBCR)is the official journal of the Craniofacial Research Foundation (CRF). The journal aims to provide a common platform for both clinical and translational research and to promote interdisciplinary sciences in craniofacial region. JOBCR publishes content that includes diseases, injuries and defects in the head, neck, face, jaws and the hard and soft tissues of the mouth and jaws and face region; diagnosis and medical management of diseases specific to the orofacial tissues and of oral manifestations of systemic diseases; studies on identifying populations at risk of oral disease or in need of specific care, and comparing regional, environmental, social, and access similarities and differences in dental care between populations; diseases of the mouth and related structures like salivary glands, temporomandibular joints, facial muscles and perioral skin; biomedical engineering, tissue engineering and stem cells. The journal publishes reviews, commentaries, peer-reviewed original research articles, short communication, and case reports.