波特酒染色及其对患者生活质量和心理社会问题的影响。

IF 1.4 4区 医学 Q3 ALLERGY
Postepy Dermatologii I Alergologii Pub Date : 2025-06-13 eCollection Date: 2025-06-01 DOI:10.5114/ada.2025.152120
Klaudia Lipińska, Natalia Bień, Maria Rajczak, Michał Niedźwiedź, Paweł Kowalski, Aleksandra Kobusiewicz, Igor Bednarski, Małgorzata Skibińska, Joanna Narbutt, Anna Zalewska-Janowska, Dorota Sobolewska-Sztychny, Magdalena Ciążyńska, Aleksandra Lesiak
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引用次数: 0

摘要

简介:葡萄酒斑痣(PWS)是一种先天性血管畸形。它可能导致生活质量低下或被污名化。通过多份问卷收集患者的精神状态数据。目的:本研究的目的是使用标准化工具调查PWS患者的心理社会健康状况,并提高人们对皮肤病心理卫生保健重要性的认识。材料与方法:59例成年患者在线填写5份心理问卷:皮肤病生活质量指数(DLQI)、皮肤指数-29、污名化感知问卷(PSQ)、畸形关注问卷(DCQ)、医院焦虑抑郁量表(HADS),并提供人口学资料和病变特征。这些数据要进行分析。结果:59例患者中,女性占86.4%,男性占13.6%。平均年龄32.12岁。根据DLQI, 52.5%的患者生活质量下降。根据HADS, 45.8%的患者有焦虑,22%的患者有抑郁。Skindex-29显示PWS对患者生活有中度负面影响。在超过一半的患者中,由于DCQ结果,他们对身体的感知受到了干扰。结论:PWS影响患者的社会心理健康,包括他们的生活质量,对身体的自我感知或污名化的感觉。需要跨学科的方法来为患者提供必要的心理或精神护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Port-wine stain and its influence on patients' quality of life and psychosocial issues.

Introduction: Port-wine stain (PWS) is a congenital vascular malformation. It can result in inferior quality of life or stigmatization. Multiple questionnaires are used to collect data about patients' mental state.

Aim: The aim of the study was to investigate psychosocial well-being of patients with PWS using standardized tools and raise the awareness of the importance of mental health care in dermatological conditions.

Material and methods: 59 adult patients filled an online survey consisting of 5 psychological questionnaires: Dermatology Life Quality Index (DLQI), Skindex-29, Perceived Stigmatization Questionnaire (PSQ), Dysmorphic Concern Questionnaire (DCQ), Hospital Anxiety and Depression Scale (HADS), and also provided demographic data and lesion characteristics. The data were subjected to analysis.

Results: Out of the 59 patients, 86.4% were females and 13.6% were males. The mean age was 32.12 years. According to DLQI, quality of life was decreased in 52.5% of patients. According to HADS, 45.8% of patients were affected by anxiety and 22% by depression. Skindex-29 revealed that PWS had a moderate negative influence on patients' life. In more than half of the patients, perception of their body was disturbed due to DCQ results.

Conclusions: PWS affects psychosocial well-being of patients including their quality of life, self-perception of the body or feeling of stigmatization. Interdisciplinary approach is needed to provide patients with necessary psychological or psychiatric care.

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来源期刊
CiteScore
2.60
自引率
7.10%
发文量
107
审稿时长
6-12 weeks
期刊介绍: Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii is a bimonthly aimed at allergologists and dermatologists.
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