谁使用来自OncoAppstore的自我管理应用程序:描述真实世界用户群体的特征、症状和功能。

IF 3.1 2区 医学 Q2 ONCOLOGY
A M de Korte, L van Deursen, M L van der Lee, J J Aardoom, N P M Ezendam, P Heine, F Mols, H Mulder-Mertens, M M Stouten, C R M Lammens
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引用次数: 0

摘要

目的:荷兰癌症患病率的上升对资源分配和可持续护理服务提出了挑战。电子保健干预措施,如自我管理应用,可能会降低医疗保健的利用率。为了加强自我管理工具的使用,OncoAppstore于2023年7月推出。本研究评估了OncoAppstore用户的社会人口学和健康相关生活质量(HRQoL)特征。方法:将来自OncoAppstore的用户数据和HRQoL数据与来自荷兰癌症登记处的临床数据进行整合。描述性分析用于描述社会人口学和临床特征。卡方检验和曼-惠特尼U检验将OncoAppstore用户与荷兰成年癌症人群进行了比较。结果:共有3620名用户申请了健康信用,购买了4333个应用。大多数使用者受过高等教育(61%),患有乳腺癌(50%),社会经济地位高(53%)。与非用户相比,OncoAppstore用户更年轻(56 vs 69),主要是女性(78% vs 55%),更经常接受初级治疗,诊断更早。大多数人表现出临床显著的痛苦水平,大约一半的人报告了严重的功能障碍。症状负担在疲劳、疼痛和恶心/呕吐领域最高。结论和对癌症幸存者的影响:OncoAppstore主要由高学历用户使用,他们寻求针对癌症相关疲劳的应用程序。对接受在线自我管理工具的用户特征的深入了解有助于改善自我管理基础设施,并将其长期纳入荷兰癌症护理。通过向那些能够使用自我管理工具的人提供这些工具,我们可以为那些无法从自我管理中获利的人节省稀缺的资源。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Who uses self-management apps from the OncoAppstore: description of characteristics, symptoms, and functioning of a real-world user population.

Purpose: The rising prevalence of cancer in the Netherlands challenges resource allocation and sustainable care delivery. eHealth interventions, such as self-management applications, may reduce healthcare utilisation. To enhance access to self-management tools, the OncoAppstore was launched in July 2023. This study evaluates the sociodemographic and health-related quality of life (HRQoL) characteristics of OncoAppstore users.

Methods: User data from the OncoAppstore and HRQoL data were integrated with clinical data from the Netherlands Cancer Registry. Descriptive analyses were used to describe sociodemographic and clinical characteristics. Chi-square and Mann-Whitney U tests compared OncoAppstore users with the Dutch adult cancer population.

Results: A total of 3620 users requested a health credit, and 4333 applications were purchased. Most users were highly educated (61%), had breast cancer (50%) and a high socioeconomic position (53%). Compared to non-users, OncoAppstore users were younger (56 vs 69), predominantly female (78% vs 55%), more often received primary treatment, and were diagnosed earlier. The majority indicated clinically significant distress levels and approximately half reported substantial functional impairments. Symptom burden was highest in the fatigue, pain, and nausea/vomiting domains. CONCLUSION AND IMPLICATIONS FOR CANCER SURVIVORS: The OncoAppstore is primarily utilised by highly educated users who seek applications targeting cancer-related fatigue. Insights into the characteristics of users who are receptive to online self-management tools contribute to the improvement of self-management infrastructure and its long-term integration into Dutch cancer care. By providing self-management tools to those who are able to use it, we can potentially save scarce resources for those who are unable to profit from self-management alone.

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来源期刊
CiteScore
7.00
自引率
10.80%
发文量
149
审稿时长
>12 weeks
期刊介绍: Cancer survivorship is a worldwide concern. The aim of this multidisciplinary journal is to provide a global forum for new knowledge related to cancer survivorship. The journal publishes peer-reviewed papers relevant to improving the understanding, prevention, and management of the multiple areas related to cancer survivorship that can affect quality of care, access to care, longevity, and quality of life. It is a forum for research on humans (both laboratory and clinical), clinical studies, systematic and meta-analytic literature reviews, policy studies, and in rare situations case studies as long as they provide a new observation that should be followed up on to improve outcomes related to cancer survivors. Published articles represent a broad range of fields including oncology, primary care, physical medicine and rehabilitation, many other medical and nursing specialties, nursing, health services research, physical and occupational therapy, public health, behavioral medicine, psychology, social work, evidence-based policy, health economics, biobehavioral mechanisms, and qualitative analyses. The journal focuses exclusively on adult cancer survivors, young adult cancer survivors, and childhood cancer survivors who are young adults. Submissions must target those diagnosed with and treated for cancer.
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