重症肌无力的患者观点。

IF 4.3 3区医学 Q1 MEDICINE, GENERAL & INTERNAL

Dm Disease-A-Month Pub Date : 2025-06-26 DOI:10.1016/j.disamonth.2025.101971

Matthew C Randall

{"title":"重症肌无力的患者观点。","authors":"Matthew C Randall","doi":"10.1016/j.disamonth.2025.101971","DOIUrl":null,"url":null,"abstract":"To better understand what it's like to live with myasthenia gravis (MG), we spoke to two individuals who have been living with the disease for years. They graciously shared stories that shed light on the day to day impact of this rare condition extending from muscle strength and daily functioning to personal identity and relationships. In sharing their experiences, they also offered insights and advice for others newly diagnosed with MG and for physicians managing the patients and their challenges.","PeriodicalId":51017,"journal":{"name":"Dm Disease-A-Month","volume":" ","pages":"101971"},"PeriodicalIF":4.3000,"publicationDate":"2025-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Patient perspectives on myasthenia gravis.\",\"authors\":\"Matthew C Randall\",\"doi\":\"10.1016/j.disamonth.2025.101971\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"To better understand what it's like to live with myasthenia gravis (MG), we spoke to two individuals who have been living with the disease for years. They graciously shared stories that shed light on the day to day impact of this rare condition extending from muscle strength and daily functioning to personal identity and relationships. In sharing their experiences, they also offered insights and advice for others newly diagnosed with MG and for physicians managing the patients and their challenges.\",\"PeriodicalId\":51017,\"journal\":{\"name\":\"Dm Disease-A-Month\",\"volume\":\" \",\"pages\":\"101971\"},\"PeriodicalIF\":4.3000,\"publicationDate\":\"2025-06-26\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Dm Disease-A-Month\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1016/j.disamonth.2025.101971\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"MEDICINE, GENERAL & INTERNAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Dm Disease-A-Month","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1016/j.disamonth.2025.101971","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"MEDICINE, GENERAL & INTERNAL","Score":null,"Total":0}

引用次数: 0

摘要

为了更好地了解患有重症肌无力（MG）是什么感觉，我们采访了两位患有重症肌无力多年的患者。他们慷慨地分享了一些故事，揭示了这种罕见疾病从肌肉力量和日常功能到个人身份和人际关系的日常影响。在分享他们的经验时，他们也为其他新诊断为MG的人以及管理患者和他们面临的挑战的医生提供了见解和建议。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Patient perspectives on myasthenia gravis.

To better understand what it's like to live with myasthenia gravis (MG), we spoke to two individuals who have been living with the disease for years. They graciously shared stories that shed light on the day to day impact of this rare condition extending from muscle strength and daily functioning to personal identity and relationships. In sharing their experiences, they also offered insights and advice for others newly diagnosed with MG and for physicians managing the patients and their challenges.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Dm Disease-A-Month 医学-医学：内科

CiteScore

5.70

自引率

2.50%

发文量

140

审稿时长

>12 weeks

期刊介绍： Designed for primary care physicians, each issue of Disease-a-Month presents an in-depth review of a single topic. In this way, the publication can cover all aspects of the topic - pathophysiology, clinical features of the disease or condition, diagnostic techniques, therapeutic approaches, and prognosis.