Nick Jan Tetsch, Jeanette Köppe, Linda Daume, Johannes Kleinheinz, Marcel Hanisch, Ole Oelerich
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引用次数: 0
摘要
背景：马凡氏综合征是一种罕见的结缔组织疾病。本研究旨在探讨马凡氏综合征对口腔健康的影响。方法：使用德语简略版口腔健康影响量表（OHIP-G5）确定个人报告的感知OHRQoL。此外，所有研究参与者都参加了一项临床检查，其中使用口腔物理健康指数（PhOX）测量客观口腔健康。结果：共有29例患者参与了研究。其中，女性20人，男性9人，年龄中位数为54岁（四分位数差（IQR）： 15）。OHIP-G5评分中位数为3分（IQR: 5）（范围：0-15）。PhOX评分中位数为79 （IQR: 14.5）。OHIP-G5与PhOX之间没有统计学意义的相关性（r=-0.34, p = 0.074）。结论：研究表明OHRQoL明显降低。与一般人群相比，测量的口腔健康状况略有下降。然而，马凡氏病患者应注意口腔卫生，定期接受牙科专业人员检查。临床试验号：不适用。
Oral health and oral health-related quality of life in people with Marfan syndrome: a cross-sectional study.
Background: Marfan syndrome is a rare connective tissue disorder. This study was initiated to investigate the impact of Marfan syndrome on oral health.
Methods: The person-reported perceived OHRQoL was determined using the German short version of the Oral Health Impact Profile (OHIP-G5). In addition, all study participants took part in a clinical examination in which the objective oral health was measured using the Physical Oral Health Index (PhOX).
Results: A total of 29 patients took part in the study. Of these, 20 were female and nine male and the median age was 54 years (interquartile range (IQR): 15). The median OHIP-G5 score was three (IQR: 5) (range: 0-15). The median PhOX score was 79 (IQR: 14.5). A statistically significant correlation between the OHIP-G5 and the PhOX could not be determined (r=-0.34, p = 0.074).
Conclusions: The study showed that OHRQoL in particular was reduced. The measured oral health was slightly reduced compared to the general population. Nevertheless, Marfan patients should pay great attention to oral hygiene which should be checked by dental professionals at regular intervals.
期刊介绍：
BMC Oral Health is an open access, peer-reviewed journal that considers articles on all aspects of the prevention, diagnosis and management of disorders of the mouth, teeth and gums, as well as related molecular genetics, pathophysiology, and epidemiology.
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