母亲因胎儿先天缺陷而合法终止妊娠的经验。

IF 1.4 4区 医学 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Women & Health Pub Date : 2025-07-01 Epub Date: 2025-05-19 DOI:10.1080/03630242.2025.2507269
Raquel Fernández-Heredia, Kathy Ayde Champutiz-Quintana, Marcos Camacho-Ávila, Isabel María Fernández-Medina, Cayetano Fernández-Sola, Francisco Javier Fernández-Carrasco
{"title":"母亲因胎儿先天缺陷而合法终止妊娠的经验。","authors":"Raquel Fernández-Heredia, Kathy Ayde Champutiz-Quintana, Marcos Camacho-Ávila, Isabel María Fernández-Medina, Cayetano Fernández-Sola, Francisco Javier Fernández-Carrasco","doi":"10.1080/03630242.2025.2507269","DOIUrl":null,"url":null,"abstract":"<p><p>The legal termination of a pregnancy due to congenital defects is a complex and emotionally intense that significantly impacts the mother's personal life and causes considerable psychological distress for both parents. Despite its clinical and ethical implications, there is limited qualitative research exploring the lived experiences of women undergo this process. This study aimed to explore and understand the experiences of mothers who have legally terminated a pregnancy due to fetal congenital defects. A qualitative study was conducted based on Gadamer's philosophical hermeneutics. Eleven semi-structured in-depth interviews were conducted between February and March 2023 in Spain. Participants were selected through purposive sampling. Interviews were audio-recorded, transcribed verbatim and analyzed inductively to identify emerging themes. Three main themes emerged from the data: 1) The painful diagnosis of a congenital fetal defect and the moral dilemma of terminating a wanted pregnancy; 2) The internal conflict and distressing experience of undergoing legal pregnancy termination; 3) The dual emotional wound resulting from pregnancy loss. Participants described the diagnosis as an emotional shock and reported feeling unsupported both during and after the process, highlighting critical gaps in psychosocial care. The findings reveal that legal termination of pregnancy due to fetal congenital defects has a profound emotional impact on mothers, who experience not only perinatal grief but also social invisibility and insufficient psychological support. These results emphasize the need to implement comprehensive, empathetic, and multidisciplinary care protocols to support women throughout the decision-making and grieving process.</p>","PeriodicalId":23972,"journal":{"name":"Women & Health","volume":" ","pages":"483-497"},"PeriodicalIF":1.4000,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Experiences of mothers who legally terminate a pregnancy due to fetal congenital defects.\",\"authors\":\"Raquel Fernández-Heredia, Kathy Ayde Champutiz-Quintana, Marcos Camacho-Ávila, Isabel María Fernández-Medina, Cayetano Fernández-Sola, Francisco Javier Fernández-Carrasco\",\"doi\":\"10.1080/03630242.2025.2507269\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The legal termination of a pregnancy due to congenital defects is a complex and emotionally intense that significantly impacts the mother's personal life and causes considerable psychological distress for both parents. Despite its clinical and ethical implications, there is limited qualitative research exploring the lived experiences of women undergo this process. This study aimed to explore and understand the experiences of mothers who have legally terminated a pregnancy due to fetal congenital defects. A qualitative study was conducted based on Gadamer's philosophical hermeneutics. Eleven semi-structured in-depth interviews were conducted between February and March 2023 in Spain. Participants were selected through purposive sampling. Interviews were audio-recorded, transcribed verbatim and analyzed inductively to identify emerging themes. Three main themes emerged from the data: 1) The painful diagnosis of a congenital fetal defect and the moral dilemma of terminating a wanted pregnancy; 2) The internal conflict and distressing experience of undergoing legal pregnancy termination; 3) The dual emotional wound resulting from pregnancy loss. Participants described the diagnosis as an emotional shock and reported feeling unsupported both during and after the process, highlighting critical gaps in psychosocial care. The findings reveal that legal termination of pregnancy due to fetal congenital defects has a profound emotional impact on mothers, who experience not only perinatal grief but also social invisibility and insufficient psychological support. These results emphasize the need to implement comprehensive, empathetic, and multidisciplinary care protocols to support women throughout the decision-making and grieving process.</p>\",\"PeriodicalId\":23972,\"journal\":{\"name\":\"Women & Health\",\"volume\":\" \",\"pages\":\"483-497\"},\"PeriodicalIF\":1.4000,\"publicationDate\":\"2025-07-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Women & Health\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/03630242.2025.2507269\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/5/19 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Women & Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/03630242.2025.2507269","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/5/19 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
引用次数: 0

摘要

由于先天缺陷而合法终止妊娠是一件复杂而情绪化的事情,它会严重影响母亲的个人生活,并给父母双方造成相当大的心理困扰。尽管它的临床和伦理意义,有有限的定性研究探索妇女的生活经验,经历这一过程。本研究旨在探讨和了解因胎儿先天缺陷而合法终止妊娠的母亲的经历。在伽达默尔哲学解释学的基础上进行了定性研究。该研究于2023年2月至3月在西班牙进行了11次半结构化深度访谈。参与者通过有目的的抽样选择。采访录音,逐字抄录和归纳分析,以确定新出现的主题。这些数据揭示了三个主题:1)先天性胎儿缺陷的痛苦诊断和终止想要的妊娠的道德困境;2)合法终止妊娠的内心矛盾和痛苦经历;3)流产带来的双重情感创伤。参与者将诊断描述为一种情感冲击,并报告在过程中和之后都感到得不到支持,突出了心理社会护理方面的严重差距。研究结果表明,由于胎儿先天缺陷而合法终止妊娠对母亲产生了深刻的情感影响,她们不仅经历了围产期悲伤,而且还经历了社会隐形和心理支持不足。这些结果强调需要实施全面的、共情的和多学科的护理方案,在整个决策和悲伤过程中支持妇女。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences of mothers who legally terminate a pregnancy due to fetal congenital defects.

The legal termination of a pregnancy due to congenital defects is a complex and emotionally intense that significantly impacts the mother's personal life and causes considerable psychological distress for both parents. Despite its clinical and ethical implications, there is limited qualitative research exploring the lived experiences of women undergo this process. This study aimed to explore and understand the experiences of mothers who have legally terminated a pregnancy due to fetal congenital defects. A qualitative study was conducted based on Gadamer's philosophical hermeneutics. Eleven semi-structured in-depth interviews were conducted between February and March 2023 in Spain. Participants were selected through purposive sampling. Interviews were audio-recorded, transcribed verbatim and analyzed inductively to identify emerging themes. Three main themes emerged from the data: 1) The painful diagnosis of a congenital fetal defect and the moral dilemma of terminating a wanted pregnancy; 2) The internal conflict and distressing experience of undergoing legal pregnancy termination; 3) The dual emotional wound resulting from pregnancy loss. Participants described the diagnosis as an emotional shock and reported feeling unsupported both during and after the process, highlighting critical gaps in psychosocial care. The findings reveal that legal termination of pregnancy due to fetal congenital defects has a profound emotional impact on mothers, who experience not only perinatal grief but also social invisibility and insufficient psychological support. These results emphasize the need to implement comprehensive, empathetic, and multidisciplinary care protocols to support women throughout the decision-making and grieving process.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Women & Health
Women & Health Multiple-
CiteScore
2.70
自引率
0.00%
发文量
73
期刊介绍: Women & Health publishes original papers and critical reviews containing highly useful information for researchers, policy planners, and all providers of health care for women. These papers cover findings from studies concerning health and illness and physical and psychological well-being of women, as well as the environmental, lifestyle and sociocultural factors that are associated with health and disease, which have implications for prevention, early detection and treatment, limitation of disability and rehabilitation.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信