“这就像有了第二份工作”:对不孕症的情感负担和协调护理的需求进行定性分析。

IF 2.1 3区 医学 Q2 OBSTETRICS & GYNECOLOGY
Madeleine Bernet, Eva Soom Ammann, Alexander M Quaas, Michael von Wolff, Marianne Kläusler, Arndt Büssing
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引用次数: 0

摘要

全世界有六分之一的人患有不孕症,这给他们的情感和身体带来了巨大的挑战。它对生活质量(QoL)、心理健康和社会关系的影响有据可查。然而,对受影响者生活经历的定性见解仍然有限,参与照顾他们的卫生专业人员的观点也是如此。本研究提出了一种混合方法的定性结果。通过与26名受影响个人的23次半结构化访谈和与20名医疗保健专业人员的3次焦点小组讨论收集数据。研究结果强调了不孕不育的多重负担,包括情绪困扰、关系紧张和普遍的社会排斥感。参与者明确表示需要更多同理心和个性化的护理,而医疗保健专业人员则指出了结构性障碍。该研究还发现,社会对不孕症缺乏认识,面临着复杂的挑战。在一些叙述中,灵性作为一种个人应对资源出现——尽管在临床实践中经常被忽视或没有得到充分的解决。主要建议包括扩大同伴支持网络、提高公众认识、灵活的治疗模式和专业间合作。未来的研究应评估同伴支持系统和跨学科护理模式在解决受不孕症影响的个体复杂和多样化需求方面的有效性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"It's like having a second job": qualitative insights into the emotional burden of infertility and the need for coordinated care.

Infertility, affecting one in six individuals worldwide, poses substantial emotional and physical challenges. Its impact on quality of life (QoL), mental health and social relationships is well documented. However, qualitative insights into the lived experiences of those affected remain limited, as do the perspectives of health professionals involved in their care. This study presents qualitative findings from a mixed-method approach. Data were collected through 23 semi-structured interviews with 26 affected individuals and three focus group discussions with 20 healthcare professionals. The results underscore the multifaceted burden of infertility, including emotional distress, relationship strain and a pervasive sense of social exclusion. Participants expressed a clear need for more empathetic and individualized care, while healthcare professionals pointed to structural barriers. The study also identified a lack of societal recognition for infertility and the complex challenges. In some narratives, spirituality emerged as a personal coping resource - though one that is often overlooked or insufficiently addressed in clinical practice. Key recommendations include the expansion of peer support networks, public awareness raising, flexible treatment models and interprofessional collaboration. Future research should evaluate the effectiveness of peer support systems and interdisciplinary care models in addressing the complex and diverse needs of individuals affected by infertility.

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来源期刊
CiteScore
6.10
自引率
3.20%
发文量
54
审稿时长
>12 weeks
期刊介绍: The Journal of Psychosomatic Obstetrics and Gynecology was founded in 1982 in order to provide a scientific forum for obstetricians, gynecologists, psychiatrists and psychologists, academic health professionals as well as for all those who are interested in the psychosocial and psychosomatic aspects of women’s health. Another of its aims is to stimulate obstetricians and gynecologists to pay more attention to this very important facet of their profession.
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