{"title":"患者影响者:理解社会媒体上健康传播的文化包容性。","authors":"Erin Willis, Kate Friedel, Marjorie Delbaere","doi":"10.1177/10497323251326842","DOIUrl":null,"url":null,"abstract":"<p><p>A new form of social media influencer is the patient influencer, or patients who share \"lived experiences\" of chronic disease online and who build communities of patients. Trust in the healthcare system is a challenge for people of color due to the systemic racism and other barriers encountered. This article explores the intersection of health communication, patient influencers, and cultural inclusivity. Using the Theory of Planned Behavior's theoretical constructs (subjective norms, personal attitudes, and perceived behavioral control), thematic analysis was used to understand culturally inclusive health communication strategies used by patient influencers of color. In-depth interviews (<i>N</i> = 18) were conducted. Findings suggest that patient influencers of color have the capacity to promote inclusivity and trust within their social networking communities. Patient influencers want to empower others through their authentic content about living with and managing chronic disease. Theoretical and practical applications are addressed.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251326842"},"PeriodicalIF":2.6000,"publicationDate":"2025-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Patient Influencers: Understanding Cultural Inclusivity in Health Communication on Social Media.\",\"authors\":\"Erin Willis, Kate Friedel, Marjorie Delbaere\",\"doi\":\"10.1177/10497323251326842\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>A new form of social media influencer is the patient influencer, or patients who share \\\"lived experiences\\\" of chronic disease online and who build communities of patients. Trust in the healthcare system is a challenge for people of color due to the systemic racism and other barriers encountered. This article explores the intersection of health communication, patient influencers, and cultural inclusivity. Using the Theory of Planned Behavior's theoretical constructs (subjective norms, personal attitudes, and perceived behavioral control), thematic analysis was used to understand culturally inclusive health communication strategies used by patient influencers of color. In-depth interviews (<i>N</i> = 18) were conducted. Findings suggest that patient influencers of color have the capacity to promote inclusivity and trust within their social networking communities. Patient influencers want to empower others through their authentic content about living with and managing chronic disease. Theoretical and practical applications are addressed.</p>\",\"PeriodicalId\":48437,\"journal\":{\"name\":\"Qualitative Health Research\",\"volume\":\" \",\"pages\":\"10497323251326842\"},\"PeriodicalIF\":2.6000,\"publicationDate\":\"2025-04-30\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Qualitative Health Research\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/10497323251326842\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"INFORMATION SCIENCE & LIBRARY SCIENCE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Qualitative Health Research","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/10497323251326842","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"INFORMATION SCIENCE & LIBRARY SCIENCE","Score":null,"Total":0}
Patient Influencers: Understanding Cultural Inclusivity in Health Communication on Social Media.
A new form of social media influencer is the patient influencer, or patients who share "lived experiences" of chronic disease online and who build communities of patients. Trust in the healthcare system is a challenge for people of color due to the systemic racism and other barriers encountered. This article explores the intersection of health communication, patient influencers, and cultural inclusivity. Using the Theory of Planned Behavior's theoretical constructs (subjective norms, personal attitudes, and perceived behavioral control), thematic analysis was used to understand culturally inclusive health communication strategies used by patient influencers of color. In-depth interviews (N = 18) were conducted. Findings suggest that patient influencers of color have the capacity to promote inclusivity and trust within their social networking communities. Patient influencers want to empower others through their authentic content about living with and managing chronic disease. Theoretical and practical applications are addressed.
期刊介绍:
QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.