针对自闭症谱系障碍儿童家长的电子辅导:随机对照试验方案

IF 4.1 3区 综合性期刊 Q1 MULTIDISCIPLINARY SCIENCES
Chloé Peter, Evelyne Antonietti, Maria-Paraskevi Antoniou, Elvire Bucaille, Joana Almeida Osório, Sabine Manificat, Borja Rodríguez-Herreros, Nadia Chabane
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引用次数: 0

摘要

自闭症谱系障碍(Autism spectrum disorder, ASD)是一种严重影响儿童发育的神经发育疾病,对儿童医疗保健提出了重大挑战。早期父母干预(pmi)旨在通过共同参与日常活动来提高儿童的社会沟通技能。然而,由于实施障碍和后勤方面的挑战,这类干预措施的广泛获得受到严重限制。技术的使用可能为更多家庭提供有希望的替代方案。这项随机对照试验将评估一项创新的电子辅导计划的效果,该计划旨在通过在线学习平台结合个性化情况汇报,为患有自闭症儿童的父母提供有效的策略。该研究将在99个有学龄前自闭症儿童的家庭中,将电子指导与标准的儿童自闭症沟通治疗以及没有PMI进行比较,这三种方法都与社区援助相结合。主要结果将是亲子互动的质量,通过在半结构化的标准化游戏过程中进行行为评估和同时使用头戴式眼球追踪仪进行双凝视记录来衡量。次要结果包括儿童的发展水平和父母的幸福。如果得到证实,电子辅导可以传播到更多的家庭,并对他们的生活质量产生积极影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

E-coaching for parents of children with autism spectrum disorder: Protocol for a randomized controlled trial

E-coaching for parents of children with autism spectrum disorder: Protocol for a randomized controlled trial
Autism spectrum disorder (ASD) is a neurodevelopmental condition that significantly affects children's development, posing a significant challenge in pediatric healthcare. Early parent-mediated interventions (PMIs) aim to improve a child's social communication skills through joint engagement in daily activities. However, widespread access to this type of intervention is heavily limited due to implementation barriers and logistical challenges. The use of technology may offer promising alternatives to reach more families. This randomized controlled trial will assess the efficacy of an innovative e-coaching program designed to provide parents of young children with ASD with effective strategies via an online learning platform combined with personalized debriefings. It will compare e-coaching to standard Pediatric Autism Communication Therapy and to the absence of a PMI, with all three arms combined with community assistance as usual, in a cohort of 99 families with preschool children with ASD. The primary outcome will be the quality of parent–child interaction, measured through behavioral assessments and simultaneous dual gaze recording with head-mounted eye-tracking during semi-structured standardized play sessions. Secondary outcomes will include the child's developmental level and parental well-being. If validated, e-coaching could be disseminated to reach more families and have a positive impact on their quality of life.
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来源期刊
Annals of the New York Academy of Sciences
Annals of the New York Academy of Sciences 综合性期刊-综合性期刊
CiteScore
11.00
自引率
1.90%
发文量
193
审稿时长
2-4 weeks
期刊介绍: Published on behalf of the New York Academy of Sciences, Annals of the New York Academy of Sciences provides multidisciplinary perspectives on research of current scientific interest with far-reaching implications for the wider scientific community and society at large. Each special issue assembles the best thinking of key contributors to a field of investigation at a time when emerging developments offer the promise of new insight. Individually themed, Annals special issues stimulate new ways to think about science by providing a neutral forum for discourse—within and across many institutions and fields.
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