{"title":"更正“捕捉真实世界的罕见疾病患者旅程：当前的方法是否足以做出明智的医疗保健决策？”","authors":"","doi":"10.1111/jep.70072","DOIUrl":null,"url":null,"abstract":"<p>K. A. Cribbs, L. T. A. Blackmore, A. R. Banks, D. S. Kim, B. J. Lahue, “Capturing Real-World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?,” <i>Journal of Evaluation in Clinical Practice</i> 31, no. 1 (2025): e70010, doi:10.1111/jep.70010.</p><p>In the Abstract, under <b>Results</b>, the following result was incorrect, “…<i>and <b>cross-sectional (26%)</b> designs…”</i> (<i>n</i> = 26, or 84%, of studies were cross-sectional, not 26%). This should have read, “<i>and <b>cross-sectional (84%)</b> designs….”</i></p><p>In Figure 5, the word ‘perceived’ in “Self-Perceived Health Status” is spelled incorrectly. This should have read, “Self-Perceived Health Status.” A corrected version of this figure is on the following page.</p><p>We apologize for these errors.</p>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 2","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2025-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70072","citationCount":"0","resultStr":"{\"title\":\"Correction to “Capturing Real-World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?”\",\"authors\":\"\",\"doi\":\"10.1111/jep.70072\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>K. A. Cribbs, L. T. A. Blackmore, A. R. Banks, D. S. Kim, B. J. Lahue, “Capturing Real-World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?,” <i>Journal of Evaluation in Clinical Practice</i> 31, no. 1 (2025): e70010, doi:10.1111/jep.70010.</p><p>In the Abstract, under <b>Results</b>, the following result was incorrect, “…<i>and <b>cross-sectional (26%)</b> designs…”</i> (<i>n</i> = 26, or 84%, of studies were cross-sectional, not 26%). This should have read, “<i>and <b>cross-sectional (84%)</b> designs….”</i></p><p>In Figure 5, the word ‘perceived’ in “Self-Perceived Health Status” is spelled incorrectly. This should have read, “Self-Perceived Health Status.” A corrected version of this figure is on the following page.</p><p>We apologize for these errors.</p>\",\"PeriodicalId\":15997,\"journal\":{\"name\":\"Journal of evaluation in clinical practice\",\"volume\":\"31 2\",\"pages\":\"\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-03-26\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70072\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of evaluation in clinical practice\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/jep.70072\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of evaluation in clinical practice","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jep.70072","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
摘要
K. A. Cribbs， L. T. A. Blackmore， A. R. Banks， D. S. Kim， B. J. Lahue，“捕捉真实世界的罕见病患者旅程：当前的方法是否足以为知情的医疗保健决策？”《临床实践评估杂志》第31期。1 (2025): e70010, doi:10.1111/jep.70010。在摘要的“结果”项下，以下结果是不正确的，“……和横截面（26%）设计……”（n = 26，即84%的研究是横截面，而不是26%）。这应该是“和横截面（84%）设计....”在图5中，“自我感知健康状态”中的“感知”一词拼写错误。这应该是“自我感知的健康状况”这个数字的更正版本见下一页。我们为这些错误道歉。
Correction to “Capturing Real-World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?”
K. A. Cribbs, L. T. A. Blackmore, A. R. Banks, D. S. Kim, B. J. Lahue, “Capturing Real-World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?,” Journal of Evaluation in Clinical Practice 31, no. 1 (2025): e70010, doi:10.1111/jep.70010.
In the Abstract, under Results, the following result was incorrect, “…and cross-sectional (26%) designs…” (n = 26, or 84%, of studies were cross-sectional, not 26%). This should have read, “and cross-sectional (84%) designs….”
In Figure 5, the word ‘perceived’ in “Self-Perceived Health Status” is spelled incorrectly. This should have read, “Self-Perceived Health Status.” A corrected version of this figure is on the following page.
期刊介绍：
The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
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