Nicole von Steinbuechel, Marina Zeldovich, Ivana Holloway, Anna C Mayer, Philine Rojczyk, Ugne Krenz, Inga K Koerte, Michaela Veronika Bonfert, Steffen Berweck, Matthias Kieslich, Knut Brockmann, Maike Roediger, Michael Lendt, Michael Staebler, Christian Auer, Axel Neu, Alexander Kaiser, Joenna Driemeyer, Ulrike Wartemann, Daniel Pinggera, Claudius Thomé, Victoria Schoen, Philipp Geiger, Joachim Suss, Anna Buchheim, Holger Muehlan, Katrin Cunitz
{"title":"儿童和青少年脑损伤后生活质量问卷-代理版本（qolibrii - kid /ADO-Proxy）的验证","authors":"Nicole von Steinbuechel, Marina Zeldovich, Ivana Holloway, Anna C Mayer, Philine Rojczyk, Ugne Krenz, Inga K Koerte, Michaela Veronika Bonfert, Steffen Berweck, Matthias Kieslich, Knut Brockmann, Maike Roediger, Michael Lendt, Michael Staebler, Christian Auer, Axel Neu, Alexander Kaiser, Joenna Driemeyer, Ulrike Wartemann, Daniel Pinggera, Claudius Thomé, Victoria Schoen, Philipp Geiger, Joachim Suss, Anna Buchheim, Holger Muehlan, Katrin Cunitz","doi":"10.1080/02699052.2025.2481435","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The QOLIBRI-KID/ADO-Proxy is the first disease-specific health-related quality of life (HRQoL) proxy questionnaire developed for use in the field of pediatric traumatic brain injury (TBI), when children are unable to report their HRQoL themselves.</p><p><strong>Methods: </strong>Its psychometric properties in a German-speaking context are examined in two samples (development and validation). Dyads of 600 parents and their children (aged 8-17 years) were included.</p><p><strong>Results: </strong>The 35-item questionnaire covers six dimensions (Cognition, Self, Daily Life and Autonomy, Social Relationships, Emotions, and Physical Problems). Results showed good to excellent internal consistencies, acceptable test-retest reliability, and low to fair parent-child agreement. Confirmatory factor analyses supported the one-level six-factor structure. In terms of construct validity, there was an overlap between the disease-specific and the generic HRQoL. Lower parent-reported HRQoL in children was associated with lower parental education, lower functional recovery (Study I), more recent TBI, and more severe depressive, anxiety, and post-concussion symptoms. Findings differed between the two studies in terms of age, gender, and TBI severity. Study I found more severe TBI linked to lower HRQoL in adolescents, while Study II indicated lower HRQoL ratings in girls.</p><p><strong>Conclusion: </strong>The QOLIBRI-KID/ADO-Proxy is recommended when individuals are unable to self-report their HRQoL.</p>","PeriodicalId":9082,"journal":{"name":"Brain injury","volume":" ","pages":"1-16"},"PeriodicalIF":1.5000,"publicationDate":"2025-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Quality of life after brain injury in children and adolescents questionnaire - validation of the proxy version (QOLIBRI-KID/ADO-Proxy).\",\"authors\":\"Nicole von Steinbuechel, Marina Zeldovich, Ivana Holloway, Anna C Mayer, Philine Rojczyk, Ugne Krenz, Inga K Koerte, Michaela Veronika Bonfert, Steffen Berweck, Matthias Kieslich, Knut Brockmann, Maike Roediger, Michael Lendt, Michael Staebler, Christian Auer, Axel Neu, Alexander Kaiser, Joenna Driemeyer, Ulrike Wartemann, Daniel Pinggera, Claudius Thomé, Victoria Schoen, Philipp Geiger, Joachim Suss, Anna Buchheim, Holger Muehlan, Katrin Cunitz\",\"doi\":\"10.1080/02699052.2025.2481435\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>The QOLIBRI-KID/ADO-Proxy is the first disease-specific health-related quality of life (HRQoL) proxy questionnaire developed for use in the field of pediatric traumatic brain injury (TBI), when children are unable to report their HRQoL themselves.</p><p><strong>Methods: </strong>Its psychometric properties in a German-speaking context are examined in two samples (development and validation). Dyads of 600 parents and their children (aged 8-17 years) were included.</p><p><strong>Results: </strong>The 35-item questionnaire covers six dimensions (Cognition, Self, Daily Life and Autonomy, Social Relationships, Emotions, and Physical Problems). Results showed good to excellent internal consistencies, acceptable test-retest reliability, and low to fair parent-child agreement. Confirmatory factor analyses supported the one-level six-factor structure. In terms of construct validity, there was an overlap between the disease-specific and the generic HRQoL. Lower parent-reported HRQoL in children was associated with lower parental education, lower functional recovery (Study I), more recent TBI, and more severe depressive, anxiety, and post-concussion symptoms. Findings differed between the two studies in terms of age, gender, and TBI severity. Study I found more severe TBI linked to lower HRQoL in adolescents, while Study II indicated lower HRQoL ratings in girls.</p><p><strong>Conclusion: </strong>The QOLIBRI-KID/ADO-Proxy is recommended when individuals are unable to self-report their HRQoL.</p>\",\"PeriodicalId\":9082,\"journal\":{\"name\":\"Brain injury\",\"volume\":\" \",\"pages\":\"1-16\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2025-03-21\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Brain injury\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/02699052.2025.2481435\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"NEUROSCIENCES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Brain injury","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/02699052.2025.2481435","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"NEUROSCIENCES","Score":null,"Total":0}
Quality of life after brain injury in children and adolescents questionnaire - validation of the proxy version (QOLIBRI-KID/ADO-Proxy).
Background: The QOLIBRI-KID/ADO-Proxy is the first disease-specific health-related quality of life (HRQoL) proxy questionnaire developed for use in the field of pediatric traumatic brain injury (TBI), when children are unable to report their HRQoL themselves.
Methods: Its psychometric properties in a German-speaking context are examined in two samples (development and validation). Dyads of 600 parents and their children (aged 8-17 years) were included.
Results: The 35-item questionnaire covers six dimensions (Cognition, Self, Daily Life and Autonomy, Social Relationships, Emotions, and Physical Problems). Results showed good to excellent internal consistencies, acceptable test-retest reliability, and low to fair parent-child agreement. Confirmatory factor analyses supported the one-level six-factor structure. In terms of construct validity, there was an overlap between the disease-specific and the generic HRQoL. Lower parent-reported HRQoL in children was associated with lower parental education, lower functional recovery (Study I), more recent TBI, and more severe depressive, anxiety, and post-concussion symptoms. Findings differed between the two studies in terms of age, gender, and TBI severity. Study I found more severe TBI linked to lower HRQoL in adolescents, while Study II indicated lower HRQoL ratings in girls.
Conclusion: The QOLIBRI-KID/ADO-Proxy is recommended when individuals are unable to self-report their HRQoL.
期刊介绍：
Brain Injury publishes critical information relating to research and clinical practice, adult and pediatric populations. The journal covers a full range of relevant topics relating to clinical, translational, and basic science research. Manuscripts address emergency and acute medical care, acute and post-acute rehabilitation, family and vocational issues, and long-term supports. Coverage includes assessment and interventions for functional, communication, neurological and psychological disorders.
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