脊髓损伤患者自我管理能力评定量表的编制及心理测量学评价。

IF 1.9 4区医学 Q3 CLINICAL NEUROLOGY

Journal of Clinical Neuroscience Pub Date : 2025-01-16 DOI:10.1016/j.jocn.2025.111049

Hang Li , Xue-Yun Wang , Ling-Yan Bao , Jia-Lei Zheng , Jing Li

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引用次数: 0

摘要

目的：本研究的目的是制定一个评估脊髓损伤患者自我管理能力的量表，并为实施有针对性的干预提供评估工具。方法：借鉴健康行为改变综合理论（ITHBC）和国际功能、残疾和健康分类（ICF）框架，通过文献分析、半结构化访谈和专家咨询，采用德尔菲法编制脊髓损伤患者自我管理能力评估量表的初始版本。随后，由20名专家组成的小组进行了两轮调查，以便根据所获得的反馈意见改进量表中的项目。结果：两轮专家问询问卷的有效回收率为100%，两轮专家权威系数分别为0.925和0.940。两轮的肯德尔一致性系数分别为0.200和0.317。本研究编制的脊髓损伤患者自我管理能力评估量表共54项，包括疾病知识管理、日常行为管理、社会心理管理、信息资源管理和康复训练五个维度。结论：采用德尔菲法编制了脊髓损伤患者自我管理能力评估量表。它可以用来评价脊髓损伤患者的自我管理能力水平，但需要进一步的实证验证。

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Development and psychometric evaluation of a self-management ability assessment scale for individuals with spinal cord injury

Objective

The objective of this study was to develop a scale to assess the self-management capability of patients with spinal cord injuries and provide an evaluation tool for implementing targeted interventions.

Methods

Drawing upon the Integrated Theory of Health Behavior Change (ITHBC) and the International Classification of Functioning, Disability, and Health (ICF) framework, an initial version of the Spinal Cord Injury Patient Self-Management Capability Assessment Scale was developed through literature analysis, semi-structured interviews, and expert inquiry using the Delphi method. Subsequently, two rounds of inquiries were conducted with a panel of 20 experts to refine items in the scale based on the feedback obtained.

Results

The two rounds of expert inquiry questionnaires yielded an effective recovery rate of 100%, with expert authority coefficients for the two rounds of inquiries being 0.925 and 0.940, respectively. Kendall’s coefficient of concordance for the two rounds was 0.200 and 0.317, respectively. The finalized 54-item Spinal Cord Injury Patient Self-Management Capability Assessment Scale developed in this study comprises five dimensions: disease knowledge management, daily behavior management, social-psychological management, information and resource management, and rehabilitation exercise.

Conclusion

A Spinal Cord Injury Patient Self-Management Capability Assessment Scale was developed based on the Delphi method. It may be used to evaluate the level of self-management capability of patients with spinal cord injuries but warrants further empirical verification.

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来源期刊

Journal of Clinical Neuroscience 医学-临床神经学

CiteScore

4.50

自引率

0.00%

发文量

402

审稿时长

40 days

期刊介绍： This International journal, Journal of Clinical Neuroscience, publishes articles on clinical neurosurgery and neurology and the related neurosciences such as neuro-pathology, neuro-radiology, neuro-ophthalmology and neuro-physiology. The journal has a broad International perspective, and emphasises the advances occurring in Asia, the Pacific Rim region, Europe and North America. The Journal acts as a focus for publication of major clinical and laboratory research, as well as publishing solicited manuscripts on specific subjects from experts, case reports and other information of interest to clinicians working in the clinical neurosciences.