语言——病人治疗中缺失的一颗重要药丸:从病人和家属的角度看癌症治疗中的语言障碍。

IF 2.1 4区 医学 Q2 NURSING
Lisbeth Birkelund, Karin Brochstedt Dieperink, Morten Sodemann, Johanna Falby Lindell, Karina Dahl Steffensen, Dorthe Susanne Nielsen
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引用次数: 0

摘要

目的:当严重疾病发生时,有效的沟通是必不可少的,但受到语言障碍的挑战。本研究探讨了丹麦语水平有限的患者及其家人在两家丹麦公立医院癌症护理期间的语言障碍。方法:本研究采用现象学-解释学的方法,强调叙事对参与者生活经验的理解。因此,对17名举报人进行了9次定性、半结构化访谈,其中包括9名患者和8名亲属。采访被录音并逐字记录下来。结果:基于分析,确定了三个主题:1)语言障碍背后的痛苦史;2)语言痛苦——被困在母语中的感觉;3)语言安全的障碍与途径。调查结果显示,痛苦的故事不仅被带到医院,而且还在那里继续。与无法与医疗专业人员直接沟通相关的痛苦感觉似乎是不可避免的,但持续的移情护理提供者,包括专业口译员,增加了患者和家庭成员的福祉。结论:语言障碍不仅使患者更容易产生误解和医疗错误,而且增加了癌症治疗过程中的痛苦体验。从这项研究中产生的知识强调语言是促进更公平的癌症治疗的基础要素。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Language - a vital pill missing in patients' treatment: language barriers during cancer care through the eyes of patients and families.

Purpose: When serious illness occurs, effective communication is essential but challenged by language barriers. This study explores how patients with limited Danish proficiency and their families experience language barriers during cancer care in two Danish public hospitals.

Method: Adopting a phenomenological-hermeneutic approach, the study stresses narratives in understanding participants' lived experiences. Accordingly, nine qualitative, semi-structured interviews were conducted with 17 informants, including nine patients and eight relatives. The interviews were audio-recorded and transcribed verbatim.

Results: Based on analysis, three themes were identified: 1) A history of pain behind the language barrier; 2) Linguistic pain-a feeling of being trapped in mother tongue; and 3) Barriers and pathways to linguistic safety. The findings reveal that painful stories were not only brought into the hospital but continued there. Painful feelings associated with being unable to communicate directly with the healthcare professionals seemed inescapable, but continuity of empathetic care providers, including professional interpreters, increased the well-being of both patients and family members.

Conclusion: Language barriers not only make patients more susceptible to misunderstandings and medical errors but amplify experiences of pain during cancer care. The generated knowledge from this study emphasizes language as a foundational element in advancing more equitable cancer care.

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来源期刊
CiteScore
3.20
自引率
5.60%
发文量
99
审稿时长
14 weeks
期刊介绍: International Journal of Qualitative Studies on Health and Well-being acknowledges the international and interdisciplinary nature of health-related issues. It intends to provide a meeting-point for studies using rigorous qualitative methodology of significance for issues related to human health and well-being. The aim of the International Journal of Qualitative Studies on Health and Well-being is to support and to shape the emerging field of qualitative studies and to encourage a better understanding of all aspects of human health and well-being.
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