数据团结:通过数字工具实现公共价值。

IF 2.3 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Global Public Health Pub Date : 2025-12-01 Epub Date: 2025-01-10 DOI:10.1080/17441692.2025.2450403
Seliem El-Sayed, Ilona Kickbusch, Barbara Prainsack
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引用次数: 0

摘要

大多数数据治理框架的设计都是为了保护数据来源的个人。然而,数字实践的影响扩展到更广泛的人群,并嵌入国家内部和国家之间的重大权力不对称。此外,数字社会中的不平等影响到每个人,而不仅仅是那些直接参与其中的人。应对这些挑战需要一种超越个人数据控制的方法,并以公平的价值观为基础,公正地贡献数据使用的利益和风险。基于团结的数据治理(简而言之:数据团结)建议将数据使用优先于数据类型,并建议积极促进产生公共价值的数据使用,禁止或严格监管产生重大风险和危害的数据使用,对产生很少或没有公共价值的私人利益的数据使用“征税”,以便企业数据用户产生的利润再投资于公共领域。在全球卫生数据治理的背景下,数据使用产生的公共价值至关重要。这一贡献阐明了数据团结中公共价值的意义、重要性和潜力,并概述了通过PLUTO工具实施的方法,该工具专门用于评估数据使用的公共价值。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Data solidarity: Operationalising public value through a digital tool.

Most data governance frameworks are designed to protect the individuals from whom data originates. However, the impacts of digital practices extend to a broader population and are embedded in significant power asymmetries within and across nations. Further, inequities in digital societies impact everyone, not just those directly involved. Addressing these challenges requires an approach which moves beyond individual data control and is grounded in the values of equity and a just contribution of benefits and risks from data use. Solidarity-based data governance (in short: data solidarity), suggests prioritising data uses over data type and proposes that data uses that generate public value should be actively facilitated, those that generate significant risks and harms should be prohibited or strictly regulated, and those that generate private benefits with little or no public value should be 'taxed' so that profits generated by corporate data users are reinvested in the public domain. In the context of global health data governance, the public value generated by data use is crucial. This contribution clarifies the meaning, importance, and potential of public value within data solidarity and outlines methods for its operationalisation through the PLUTO tool, specifically designed to assess the public value of data uses.

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来源期刊
Global Public Health
Global Public Health PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
6.50
自引率
3.00%
发文量
120
期刊介绍: Global Public Health is an essential peer-reviewed journal that energetically engages with key public health issues that have come to the fore in the global environment — mounting inequalities between rich and poor; the globalization of trade; new patterns of travel and migration; epidemics of newly-emerging and re-emerging infectious diseases; the HIV/AIDS pandemic; the increase in chronic illnesses; escalating pressure on public health infrastructures around the world; and the growing range and scale of conflict situations, terrorist threats, environmental pressures, natural and human-made disasters.
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